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Hello, I'm new here

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  • Hello, I'm new here

    I have had interstitial cystitis since 1999. I've seen things improve for IC patients, but I'd like to see things improve even more. I was lucky to find not just a urologist who does bladder instillations, but a local gynecology center do bladder instillations. The only down side is I have to drive 40 minutes to get there. I'm looking to have bladder removal surgery, because I have trouble accessing regular care and it's making my pain worse. If anyone can refer me to a doctor who will do bladder removal surgery for an interstitial cystitis patient, it would be much appreciated. I can't get this done anywhere around where I live. The local urologist only does bladder removal for bladder cancer.