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  • My story

    I'm my name is Mandy and I have had IC for over eleven years now but was'nt diagnosed for five years. My symtoms began after my first child was born. I began to have pains in my pelvis but doctors could'nt find what was wrong. They actually took my appendix out thinking this was causing the pain. It was'nt but they did find out I had very bad IBS. After my third child was born the pain returned with a vengance. I was given numerous tests and doctors decided my pain was due to my uterus. They had found fibroids and abnormal cells during the tests I had to endure and came to the conclusion that my pain would go away if they removed it. They were wrong.
    The doctors then decided I had a bacteria in my bladder so was given numerous antibiotics which did nothing to help.
    Two years later I moved home to North Wales and registered at a local GPs. He was appauld to hear what I had gone through and sent me immediately to see a urologist who then found I had IC.
    I had spent numerous years thinking the pain was all in my mind as doctors insisted there was nothing wrong with my bladder.
    Since being diagnosed I have begun suffering other illnesses along with IC and IBS. At the moment doctors are trying to find out why I have a high level count of white blood cells and enlarged lymph glands. They have ruled out any form of cancer which is nice to know.
    In the past two years I have also lost all my hair, eyebrows and eyelashes.
    I have read a lot of peoples messages and came to the conclusion that I am not alone in suffering other illnesses associated with IC. If anyone wants to get in touch and moan I would be quite happy to listen. The thing I find most helpful when I am feeling ill and depressed is that other people feel this way and it is very helpful to talk to someone who understands what you are going through. Mandy

  • #2
    Hi, Mandy and welcome. Sounds like you have been through a lot! My IC started about a month after my second son was born. I do remember at least one time when I thought I had a UTI and the tests came back negative - prior to having my son, but I think my c-section set this thing off bigtime.

    Hope to see you around - glad you found us. [img]smile.gif[/img]

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy