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  • vm
    replied
    Hi, Mandy and welcome. Sounds like you have been through a lot! My IC started about a month after my second son was born. I do remember at least one time when I thought I had a UTI and the tests came back negative - prior to having my son, but I think my c-section set this thing off bigtime.

    Hope to see you around - glad you found us. [img]smile.gif[/img]

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  • Mandy2
    started a topic My story

    My story

    Hi
    I'm my name is Mandy and I have had IC for over eleven years now but was'nt diagnosed for five years. My symtoms began after my first child was born. I began to have pains in my pelvis but doctors could'nt find what was wrong. They actually took my appendix out thinking this was causing the pain. It was'nt but they did find out I had very bad IBS. After my third child was born the pain returned with a vengance. I was given numerous tests and doctors decided my pain was due to my uterus. They had found fibroids and abnormal cells during the tests I had to endure and came to the conclusion that my pain would go away if they removed it. They were wrong.
    The doctors then decided I had a bacteria in my bladder so was given numerous antibiotics which did nothing to help.
    Two years later I moved home to North Wales and registered at a local GPs. He was appauld to hear what I had gone through and sent me immediately to see a urologist who then found I had IC.
    I had spent numerous years thinking the pain was all in my mind as doctors insisted there was nothing wrong with my bladder.
    Since being diagnosed I have begun suffering other illnesses along with IC and IBS. At the moment doctors are trying to find out why I have a high level count of white blood cells and enlarged lymph glands. They have ruled out any form of cancer which is nice to know.
    In the past two years I have also lost all my hair, eyebrows and eyelashes.
    I have read a lot of peoples messages and came to the conclusion that I am not alone in suffering other illnesses associated with IC. If anyone wants to get in touch and moan I would be quite happy to listen. The thing I find most helpful when I am feeling ill and depressed is that other people feel this way and it is very helpful to talk to someone who understands what you are going through. Mandy
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