No announcement yet.


  • Filter
  • Time
  • Show
Clear All
new posts


    Hi, my name is Mary and I'm 42 years old. I have had IC for the past 11 years. Been doing the standard stuff, DMSO, Elmiron,etc doing pretty good with it, till last month when I went in for my DMSO treatment. Since then, I have not really been able to go to the bathroom. ( I do trinkle/drip) but thats about all. My doctors don't know whats wrong with me, and all of the test have come back fine. I am scheduled for a urodynamics test this Friday. Know what this is for the most part. What I want to know is will this tell them what is wrong with me?? I am tired of going back and forth to doctors. HELP.

  • #2
    Welcome to the IC Network. I'm very glad you found us.

    I hope you find what's wrong very soon. I know it can be very frustrating.

    Warm hugs,
    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      Many on the boards here have experienced the frustration you talk about.

      There's lots of information on this site to help you. Remember, no matter what your bladder problem, you will find support here.

      Though sometimes all of us feel like we're bashing our heads into a wall, "talking" to others really can help. banghead
      Positive thoughts and prayers that new treatments for IC will reach all who struggle with this disease,



      • #4
        Hi Welcome, I am a medical challange too. I have ic and overactive bladder. I fyou can't uriate, please call your docotor or to the er.They can cath you to get the urine out of you. I have an abnormailite on my left pelvic area and they still don't know what is wrong. I share your frustation. Please keep posting and let us know how you are doing. Hang in there.There is always hope.
        Hang in there , There is hope.
        There is hope. Prayer works.

        Love, Debbie