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A long Road

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  • gcjfine
    replied
    Hi Georgia! I'm so happy that you found the IC boards. This is a great place to get support and encouragement. I hope that you find a new doctor who will treat your pain. I will be praying for you........Christie

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  • Britgal
    replied
    Hi Georgia, and welcome, I feel for you, and all the pain you have experienced, and still are experiencing. I hope that you can get something to help you out, my heart goes out to you. Dealing with pain 24/7 can be very wearing on the spirit and the soul. Please know you have a lot of support, and compassion, and understanding, from the IC family in your situation. Keep us posted, and let us know how you are doing, and if you are getting some much needed help, hugs and welcome Iris. hi grouphug

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  • Georgia
    replied
    Thanks sweetie for your kind words & encourageing me
    First I know many people in Dothan, I went to jr. high & high school their ( small world )
    Also my Mom is haveing same thing you are and no it is not fun . Mom has osteoarthritis
    in her neck & back . Dont know if it will help you but their is also another presager
    they are doing with a cement type inbetween the vertebras ( in neck & back ) you might already know of it .
    Thanks dear for your kind words & I also pray for you and yes God has always been by my side and on my side. Please keep ion touch....... Seabreeze19 [email protected]

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  • ALYSSA'S_GRANDMA#1
    replied
    hi Welcome Georgia: It took so long for me to get Drs. to Finally find my pain /pelvic and toilet ... TO DX. me ..told me they couldn't do anything for me and would send me on to another..I am going through different treatments at this time . I was also sent to the UAB clinic in B'ham Al.Dr.Llyod there has refered me to the pain clinic IN DOTHAN AL. I AM GOING TO A SPECILIST NOW FOR A DEAD NERVE IN MY DISKS AT SPINE THAT WAS CAUSING PAIN AT WRIST AND THEY ARE DOING THE: EPIDURAL STEROID INJECTIONS IN MY NECK: AND BY NO MEANS IS THIS FUN.. eek
    I HAVE 2 MORE TO GET, WITH THE SECOND ONE I HAVE TO DO THIS THURSDAY!(keep me in your prayers!) angel
    I hope and pray for a cure for all of us that has IC and any other pain. It is so true if someone does not have this : How could they ever understand? It does make it so hard for us even with Doctors and Families.. Friends. I now have no friends ... I guess they probably wasn't my true Friends anyways.And my family hasn't ever and I don't think they will ever understand this...which really makes it real hard for me. makes me sad...
    I pray you get some relief and rest. Think positive and have Faith sweetie! kissing love Brenda

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  • vm
    replied
    Welcome, Georgia.

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  • ICNDonna
    replied
    I'm glad you found the IC Network. I suggest you check the physician list here on the IC Network --- you'll find Texas physicians at http://www.ic-network.com/md/doctorlistings.html#TX These are medical professionals who have been recommended by other IC patients.

    You should be able to get a referral to a pain specialist --- if not, then it might be time to change doctors again.

    Sending healing thoughts,
    Donna

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  • JAF
    replied
    Hi Georgia,
    Welcome to the ICN. You have certainly been through a lot. I am glad you found us. Too bad you can't find a good Dr. to help you with your pain issues. I don't know where you live in Texas but there seems to be a lot of good Dr.s down here. I live in the DFW area and I have heard of several. Hopefully something will help soon. Good Luck to you and welcome to the ICN.

    Jolene

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  • Georgia1941
    started a topic A long Road

    A long Road

    I have sufferd with IC for many many years, I have spent most of that time fighting Dr.s but as they know I am not one to give up ! I was 27 years old when my symptoms begin I am now 62.
    I dont go to Dr.s anymore I swore no one will
    ever add to my pain going threw unnessary test again. Every dr. wonts to do the same Test and in the end was same ( PAIN with no pain medication.)
    I have had every test made,every medication made & still no help! Back in 82 I had my Bladder Surgery of( Bladder Rebuilt with part of my Intestines) at University of Ala. in Birmingham
    with Dr. who saved my life a Dr. Shirrley. The Surgery helpd for 4 years thank god but that was it.
    My heart gos out to anyone who suffers with this and haveing to convence ( or try to convence Dr.s of it ) or the pain .... make it even worse to live with .
    I like David crawled to the toilet for 7 years in .... PAIN ( the bladder spasems were
    like no pain I can even begin to say)
    My Bladder Dr. told me last year their was nothing more he can do for me ! he would not give me pain pills for he was afraid I I would get hooked on them LOL guess its ok to be hooked on pain.
    I was on DMSO for years also it helped but not alot, it did at first but as time went on it did nothing. I even ask my Primary Dr. to give me something for pain when it got to bad to live with ... but he said I never heard of giving Pain medication for the bladder or going to pain managment for tbe bladder ( this is what I have had to live with ) I cant beleave he said that to me but I have seen many many dr.s over the years they know nothing or little of how this IC can destroy ones life, and they treat you as if your nuts. When one lives in this kind of pain for years I guess one could become nuts haaaaaaaaaaaa !
    My grandmother had this also but they didnt know what it was thin, my Mom, my daughter & granddaughter has it also .
    I pray befor I die their will be something to help with the pain that dr.s will give us and more that that their will be a cure
    or find the cause !
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