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What has IC taught you?

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  • What has IC taught you?

    It has taught me that you are stronger than you think.

    It has taught me not to dwell on the trivial problems in life.

    It has taught me that your body can take much more than you thought it could; and so can your sould.

    It has taught me that life is a giant puzzle, and it is up to you to put the pieces together, not someone else.

    It has taught me to be grateful for what you have, you may not have health, but you've got other things that are a blessing.

    Please share your experiences with me.
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

  • #2
    Since I'm sure if i have IC I will answer the best I can. My bladder problems have taught me!

    TO NOT GIVE UP

    TO NEVER TAKE NO FOR AN ANSWER

    TO ADVOCATE FOR YOURSELF

    TO BELIEVE IN A BETTER DAY AND A HIGHER POWER

    TO HAVE FAITH THAT I CAN OVERCOME ANYTHING!!!

    Michaela

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    • #3
      Having IC has taught me I can go through a rough period of time in my life and come out the other side with a smile on my face. Just how many friends I have, that really cared about me, and called to see how I was doing frequently. The smiles and hugs I got when I went back to all my activities. It has made me much stronger and taught me I can deal with an illness and overcome the feelings of fear I had when first diagnosed. Spiritually I know I have an even stronger faith now and know that the Lord has a very big part in my life. It has also taught me to reach out more and express my feelings to others who are experiencing the same illness, which was difficult for me at first. It has also taught me to have more respect for my body and to listen when it is trying to tell me there is something wrong. Also not to sweat those small little annoyances that come along in life and let go and enjoy every precious moment of my life. In a positive way IC has changed my life around. Iris hi
      Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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      • #4
        IC has taught me to live for the present. I know that there will be a time when the pain returns and I will need another hydro, but I don't worry about it.

        I think the most important thing IC has given me is compassion.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          It's taught me NOT to pass judgement. I was so guilty of that and I am so truly sorry...that is the greatest gift this disease has given me and I am very grateful~
          teri
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

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          • #6
            It has taught me to thank God for what you have (and I had alot before IC and didnt realize it). Also I dont sweat trivial matters like Jesser said. But when I get mad because it ruined my life for awhile I think that some people are lucky and some arent!!

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            • #7
              It has taught me to thank God for what you have (and I had alot before IC and didnt realize it). Also I dont sweat trivial matters like Jesser said. But when I get mad because it ruined my life for awhile I think that some people are lucky and some arent!!

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              • #8
                It has taught me that life seems so short when I'm not in pain and so long when I am.

                Christa

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                • #9
                  Im with Micheala and Christa.....

                  It has taught me that I can do whatever I put my mind to.

                  And it has taught me that if you have loving friends, you have almost anything....no matter where you meet them or who they are wink

                  Hugs, Rachel
                  @~~~~~~~~~~~~~~~~~[email protected]
                  "Well the Secret O'Life is enjoying the passage of time." ~James Taylor

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                  • #10
                    I'll answer this one when i am in a beter mood wink
                    Brat
                    'The will of God will never take you where the Grace of God will not protect you.'

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                    • #11
                      IC has given me a whole new outlook on life. I could write a book on it, as I'm sure many of us could. This is just one of the things on my list:

                      Before I had IC, I would always plan out my days. Now I take a day at a time. I treasure my good days when I have them. I have come to realize that Life really is a gift.

                      Lyn

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                      • #12
                        Ic has taught me more tolerance in people and in myself. It also has taught me to have more compassion for people and also unconditonal love. Ic has taught me to take it one day at a time, and also to listen to my body when I have over did it and need to rest and lay down. Ic has taught me that I am stronger than I think I am. Ic has taught me you can learn to live with and work with it. Ic has taught me how to explain to friends and people at work how ic is painful.

                        I like Iris's analogy on other post: It is like putting vinegar on an open wound. I told a couple of people at work that and the look on their faces told me how painful it would be. I told them that is how my bladder feels at times.

                        Ic has taught me that I can reach out and ask for help when I need. Ic has taught me that there are others out there with this diesease. Ic has given me more faith in the Lord and to trust in the Lord more and each day.

                        Have a pain free day everyone. grouphug grouphug
                        Hang in there , There is hope.
                        There is hope. Prayer works.

                        Love, Debbie

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                        • #13
                          I am a new member just as of yesterday. I thought maybe you could help me figure some things out. It will not let me post my story or a am doing something wrong. The only thing I can get it to do is reply, it is telling me I am not allowed to post. Do you have to do something other than register to be able to post your story? Thank you if you can help me.
                          amy

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                          • #14
                            hi Amylove,
                            Welcome to the boards! In answer to your question you must be logged in, of course, and instead of clicking on the post a reply button, click on the new topic button--then you can post your topic under the appropriate category. Hope this helps!
                            Carley

                            They that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.---Isaiah 40:31

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                            • #15
                              IC has taught me that if you have chronic pain, 99% of people think you are lying about it or making it up or exaggerating it.

                              IC has taught me that most doctors just assume you are mentally ill if you have IC.

                              IC has taught me that most people you count on will abandon you if you come down with a chronic pain disease.

                              IC has taught me that doctors are very happy to simply leave you in unbearable, endless pain rather than trying to help you.

                              IC has taught me that there are far worse things to fear than death.

                              Love, ICY

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