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  • sharing my story

    Hi everyone. My story begins in 1998, July I think.. My GYN was treating me for Bladder Infection. That didn't work so then he dilated my urethra...didn't that hurt?? Ok for 3 days. My GP then referred me to a urologist who performed a hydrodistention, finding IC. I have been on Elmiron and Amytrytline ever since. I have bad days and good days. Now that I am retired and no longer on my feet for hours at a time, I feel much better. I try to watch my diet but I am a junk food junkee and it is sooo hard. I am looking forward to hearing from you and hope to find out some new things to try. Firstmate from Canada.

  • #2
    Hi, I just wanted to say welcome to the boards! You'll find so much information and support here.

    Hugs and love,
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


    • #3
      ~welcome~ glad you are feeling better now that you are off work.. keep in touch and post often
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4
        Welcome!!! hi Glad to have you among us and hope to see you around!

        Diagnosed August 2001

        Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

        Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

        I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


        “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

        “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


        • #5
          Hello there firstmate, and welcome to the boards. This is a great place to be with so many great IC gals and a few guys. Lots of info to be found here on the network, and a lot of support. Glad you have found us, a welcoming hug Iris hi grouphug
          Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


          • #6
            welcome!!! We are here to help you if we can. I am usually much happier the less active I am too, but that just doesn't seem fair to me.
            Faith, Hope, and Love,

            I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            or find me on facebook
            Be the Miracle! & Pay it Forward!

            [email protected] please contact me...I am here to help!


            • #7
              Hi Firstmate,
              I think I answered a post of yours yesterday but may have got lost in the downtime of the boards. I was dignosed in July and started Elmiron 8 weeks ago and I am actually starting to feel good. I am also in a lot less stress then I was thru the summer and I know stress affects me big time. There are now days when I can almost forget I have a bladder.
              I am in NS feel free to pm me anyime.
              I have learned more on these boards then I have from uro and Dr. Welcome to the boards. Everyone is very helpfull.
              Love,Pam hi
              God brought me to it, He will bring me through it!!!

              Diagnosed 2003
              by cysto/hydro
              Elmiron took almost a year- made me sick, caused diarrhea
              Pyridium -Made me sick
              Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
              Tried DMSO instill- had 5 out of 6
              Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
              Cysto/hydro April 6th 2011-- on expansion only hold one cup
              IBS/ IC
              High blood pressure meds and Crestor
              Metformin (prediabetic)
              Sinequan (depression)


              • #8
                Thank you for the great greetings. It is so good to know that you are not alone. I am new to the world of computers so I am slow to finding things. BUT I am learning.

                Thanks again.[LIST] angel


                • #9
                  Hi first mate and welcome to the boards. Please post and let us know how you aredoing.
                  Hang in there , There is hope.
                  There is hope. Prayer works.

                  Love, Debbie