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  • #16
    Welcome aboard Krissy!!! Gosh, I don't know how many times I cringed when an unsupporting boss I had would ask "Are you feeling better, yet?" or "How come you're not feeling better yet?"... BECAUSE PEOPLE LIKE YOU ARE OUT ROAMING THE EARTH! [img]mad.gif[/img] Ok, Ok, maybe that'a slight overreaction... Geesh!

    Also, I know how exhausting it sounds to have to do the Dr hunt.. BUT, you need to! I've gone so far as to get myself black-balled out of the local uro's because I don't agree with any of them and I don't keep my mouth shut about it! [img]rolleyes.gif[/img] Finally, 4 GPs and 3 uros later I have a dr that will give me pain meds I need! I had one dr that did the 30 vicodin/30 day deal. Then, when I came in for a refill gave me a big speech about addiction and that he wouldn't give me anything more than Ultram.. Oh wait, I was the one who had to tell him that's a no-no with Paxil!

    ANYWAY, long story short, you have found a great place for support here!

    Please, Please look into finding a new doc! It will be worth it when you find a decent one!

    <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
    ~ Life's a Garden, Dig it. ~ Joe Dirte'
    Ryan

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    • #17
      Thanks for the proverbial kick in the rear guys! As well as the support. [img]smile.gif[/img]

      I'm doing much, much better. My GP was kind enough to write me a referall to a pain clinic and in the meantime called me in 50 vicodin, unasked! I was practically moved to tears by her ability to finally treat me!

      I am also going to see a Urogynecologist in October who should start me on some sort of meds, I'd imagne.

      Until then I've started keeping a voiding diary as well as a food diary and sticking like glue to a strict IC diet. I've also started working out with a physical therapist and by myself three to four times a week.

      In general I'm still in pain, but control-wise I'm feeling MUCH better. A lot more like I have immediate information at my disposal and that I actually genuinely am doing everything I can myself to minimize the pain from the disease.

      The only thing that worries me now is if I go into remission before I get in to see the uro/gyn. I'm praying for remission, but I am concerned that if I go in to see him and I'm not in a flare that he'll have trouble believing how bad it really was.

      Even now I just started keeping my voiding diary yesterday when I started to feel better. It was a LOT worse than that two weeks ago.

      The truth also is that knowing that I have vicodin has taken some of the edge off. I don't use it unless I need it, but knowing it's there helps me make decisions about how long I can stand the pain. When I didn't have it I was judging how long I could stand the pain until I had to get into the ER, and how long I'd have to wait until someone saw me, etc. etc.

      Anyhow, thanks for the kick in the pants. Any doctor from now on that doesn't come at this disease with me from a "we're going to try stuff until we get this licked" perspective I'm kicking to the curb. Life's too short and IC is too unbearable to waste time.

      <img src="graemlins/hi.gif" border="0" alt="[hi]" /> Hi! [img]biggrin.gif[/img]

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