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  • #1

    antibiotics and inflammation

    HI. I am new to this site and am hoping for some feedback. I was diagnosed 18 years ago with IC however I've always felt that some of my symptoms are prostate related. After coming to grips with IC when I was 29, (I'm now 45) I seemed to be able to cope with symptons and have a reasonable lifestyle. Mostly frequent trips to the bathroom, no real serious pain. Last October after drinking several glasses of red wine and a couple of Liquors, I took 1 mg of Lorazepam and went to bed. Occasionally I use Lorazepam to help me sleep. Woke up at 5am with extreme pain in my side which spread to the lower back and left me with a a pain that I would describe as a knot in the left side of my penis. It's 5 months later and I have had several courses of antibiotics as well as another cystoscopy and hydrodistention with no permanent relief. Initially had 6 weeks of Cipro which irritated my IC symptons but alleviated the Knot pain. As soon as I stopped the Cipro, the pain came back, leading me to believe that this was a prostate inflammation in addition to my normal IC sumptons. Went on Doxycycline for another 6 weeks with the same result. Pain subsided. During the 6 week course I had hydrodistention which improved all symptons after a short reovery period. However, when I stopped the Doxycycline, the pain came back. My Uro now tells me that antibiotics would not have an anti-inflammatroy effect on IC, so it may be likely that I have Prostatitis as well. I would love to hear from anyone who has used antibiotics for IC and can tell me if they experienced anti-inflammatory effects. Infectious disease doctors has identified a couple of bacteria strains in my EPS, however they are common types which may or may not be part of the problem. I'm frustrated and at my wits end. URO's in our city are not well educated in IC and don't have a keen interest in helping men with these problems. I need to decide whether to continue on antibiotics for the longer term as they do help with the pain.
    Thanks - Tim
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    • #2
      Hi, Tim, and welcome! hi I don't have a lot of answers to your questions, but I have heard many people say that there are anti inflammatory effects to some antibiotics. Many people here have posted they had relief while on an antibiotic. It seems to differ according to the individual ---- one person might flare from a particular antibiotic while another might feel good on it.

      I wonder if there are other anti inflammatory meds that might help you? Sounds like you have probably tried a lot already. I just know most docs are hesitant to put people on long term antibiotics b/c of the super infection risks.

      Hoping you find some answer and some relief. kissing
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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        • #3
          Have you tried any of the anti-inflammatory medications? It could be that the antibiotics have enough of this quality to help your symptoms. You might talk with your doctor about trying one.

          The concern I have with long term antibiotic use is the possibility of developing antibiotic-resistant infections, which can be extremely serious. Of course there are some instances where long term is needed, but my advice would have to be to approach with caution and work with your doctor on this.

          Sending warm healing thoughts,
          Donna
          Stay safe


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          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

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