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This is my story....
I am 23 years old, and for as long as I can remember, I have been in pain. When I was 15 I was diagnosed with endometriosis and ovarian cysts. I was put on birth control pills immediately. That still never took care of the pain I was always in. The only thing that helped was when I was pregnant. Unfortunately I was unable to carry full term on my first 3 pregnancies. I did deliver my daughter at 3 weeks early on the 4th, the 5th I lost as well. On the 6th I was able to deliver my son. The pregnancies helped with the pain significantly, but I did have many other problems. I went into labor with my daughter at 28 weeks and my son at 19 weeks. My uro contributes this problem to my IC. After my son I got a tubal, mostly because my b ody just can't handle it anymore. In January 2002 I was diagnosed with IC. After so many years of doctors telling me that the pain I was having was just in my head. It was such a relief to hear that someone believed me.
My uro has tried many treatments and medicines. The pain and problems have gotten out of control within the last year or so. I have tried Elmiron, Celexa, DMSO, Detrol, Celebrex, Flexeril, Arganine, Amitriptaline, Ultram (which we found out I am allergic to), Tylenol 3, Vicodin and Morphine. Sometimes I am incontinet and then there are times when I am unable to urinate at all. I have spent many weeks in foley catheters. And I never thought that would be one of the best pain relievers I would ever have.
Right now I am on Neurontin, and I am in more pain than I was just a couple of days ago. I am at my ropes end. I have 2 children that need me, especially since their father is away at Fort Benning, GA. My daughter is healthy, but my son has severe asthma that was caused from a 2 month bout of RSV.
It is hard sometimes to stay strong, but because I have my two miracle babies, I am strong enough for them. I am just hoping for one day that I will be able to get out of bed and play with my children for as long as they want, and then go to bed that evening and sleep all night without pain.
One day it will happen. Thank you all for letting me tell my story. I found this site earlier this evening and it has been lots of help for me. I am glad others have experienced the same things as me, I am not alone anymore.
My uro has tried many treatments and medicines. The pain and problems have gotten out of control within the last year or so. I have tried Elmiron, Celexa, DMSO, Detrol, Celebrex, Flexeril, Arganine, Amitriptaline, Ultram (which we found out I am allergic to), Tylenol 3, Vicodin and Morphine. Sometimes I am incontinet and then there are times when I am unable to urinate at all. I have spent many weeks in foley catheters. And I never thought that would be one of the best pain relievers I would ever have.
Right now I am on Neurontin, and I am in more pain than I was just a couple of days ago. I am at my ropes end. I have 2 children that need me, especially since their father is away at Fort Benning, GA. My daughter is healthy, but my son has severe asthma that was caused from a 2 month bout of RSV. It is hard sometimes to stay strong, but because I have my two miracle babies, I am strong enough for them. I am just hoping for one day that I will be able to get out of bed and play with my children for as long as they want, and then go to bed that evening and sleep all night without pain.
One day it will happen. Thank you all for letting me tell my story. I found this site earlier this evening and it has been lots of help for me. I am glad others have experienced the same things as me, I am not alone anymore.
I'm so glad you found us and I hope to see you around. 
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