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HI i am new to the board!

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  • HI i am new to the board!

    I just wanted to write in and introduce myself. I am a college student and I was dianogsed with interstitial cystitis over a year ago. I have had bladder and kidney infections all of my life. But I spent over a year going to the same family doctor who would keep telling me I had a tract infection and I knew it had to more than that. I had finally gotten to the point where I could not function normally, the only time I could have relief was in a hot bath or sometimes those few moments when I went to bathroom and as soon as that was over the pain was back. But I have been on Elmiron and Upsept for over a year now and I doing a lot better. I am still dealing burning and pain everyweek but I can usally control it by watching what I eat. I am STILL battling with foods I cant just give up. I lived off of Soda all of my life and it is hard just to drink water now. But I one day I will get there. I also still having lots problems with what I can and cant eat. I feel like everything I actually like to eat is off limits. Does anyone know of a good simple cookbook or just any IC pasta recipes? Keep in mind I am still newly married and I am in college so I am not a chef. Bare minimal recipes would be best. I am so glad I found this website, sometimes I feel like no one understands or takes IC as a serious disease in my family so it hard to deal with that.

  • #2
    Hi I also forget to mention I am battling with IBS and anxiety too. And IBS is very new to me. It is pretty hard trying to keep on two different diets... Esp. since i am picky eater to begin with. Is anyone else dealing with the same problems? I would love to hear from some of you that are. I always feel like everyone else is living a normal life and I am so kind of freak.



    • #3
      I'm glad you found the IC Network. You'll find diet information in the Patient Handbook at

      There are some recipes on this site --- if you go to the Browse Our Site pull-down menu, you'll find two sections there to help with recipes: One is "Fresh Tastes by Bev" --- the other is "IC Chef Cookbook."

      And if you go to the "Shop - Books and More" page, you'll find information on an excellent cookbook, titled, "A Taste of the Good Life." I have a copy and it's worth the cost.

      If you're still drinking sodas, I have to encourage you to stop, even if it's not easy. One thing I do is to buy bottled spring water, which I keep in the fridge so it's icy cold --- that way I don't mind at all that it's just water.

      Sending an encouraging hug,
      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        WELCOME! I am glad you were diagnosed. It is a relief to have a reason for the pain, etc. I am sure you will just fit in fine. Michelle


        • #5
          Hi, I just wanted to add my welcome. You will find a lot of info and support here.

          "Life is what happens when you are making other plans" John Lennon

          IC diet cheat sheet....

          Information for Patients can be found here.

          Jen's tips for great IC sex..[/url]

          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."


          • #6
            Hello and welcome, lots of information, and support here for you, great bunch of people always here to help you, through bad days and good days. Welcoming hug Iris.
            Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


            • #7
              Cindy welcome..I too have battled the soda issue. But I try like Donna suggested keep bottled spring water in refrig and it helps. I just wanted to let you know that you have come to a wonderful web site full of very compassionate, caring and supportive people. I vent often and get a lot of support. Welcome and come back often as there is always something to learn about IC. Sandy N


              • #8
                Hi. I'm in college right now too--so I definatley know a lot of what you've been through. It's hard trying to tell a professor during a final that you have to go to the bathroom--no you're not cheating! I don't have a soda addiction but one to frozen turtle mochas from caribou--yikes! Not good for the bladder. I hope you feel better--it's good to know you found some relief!