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21 yrs. IC patient...needs to talk
Hi, i'm really glad i found this site. If i would have known it was here a year ago i would have already joined.
Sorry if i give too much info about my condition but here is how it all started. I became sexully active again with my boyfriend and after a while i developed a wicked bladder/vaginal infection. The family doctor i was seeing for this wouldn't give my large enough doses of anitibiotics so my UTI became resistant to antibiotics. For 5 months i was bombarding my system with antibiotics that would never kill this infection.
Finally i was referred to a Urologist, i was thankful because he gave me the proper anitbiotics, and cleared my infection at last....of course that wasn't the end of it. Now, a little over a year later, i have had sporadic symptoms of a UTI, and i would always have my urine tested, and cultured and nothing grew. So here i am with these horrible symptoms and no infection present. I feel like i have heartburn inside my bladder. Sometimes i feel like i have a hair sitting in my urethra.
I have had a voiding test, that wasn't it. An IVP, nothing was found. I had an MRI done, no problem presented itself there. The next test my Urologist wanted to do was a cysotscopy but i just blew it off because i was sure they wouldn't find anything there as well. But i always thought that was the test i needed in the first place so i am going to consider getting it done.
I have been reading about other things, after months i've tried to ignore this and figure it's no big deal but it's really starting to worry me now. I read things about other diseases that mask itself as IC. I've never been promiscuious, and i have never had a genital herpes blister, and neither has my partner, but sometimes i wonder if my symptoms are from something of that nature. Does anyone know the likelyhood of that?
See what i mean, i totally wrack my brain at trying to figure out what is wrong with me. I feel for anyone who has this problem no matter what age they are. I've had this for a year now and i'll be 21 in a few weeks. I've been on Bactrim that i take after intercourse. This prevents me from actually having a bacterial infection. But the pain stays.
For the pain i take Urised but it is hard to take the pills four times a day. Whenever i think i can stop the Urised, the pain creeps up again. Sometimes i go weeks with just a tiny twinge here and there and it doesn't bother me, but this sneaky IC always comes back full force. It just doesn't seem right to have to keep taking those pills!
I'm curious to know how everyone elses IC started. Doctors tell me that the repeated doses of antibiotics shouldn't have ruined my bladder lining, so what is it from!!!! thanks for listening [img]smile.gif[/img]
Sorry if i give too much info about my condition but here is how it all started. I became sexully active again with my boyfriend and after a while i developed a wicked bladder/vaginal infection. The family doctor i was seeing for this wouldn't give my large enough doses of anitibiotics so my UTI became resistant to antibiotics. For 5 months i was bombarding my system with antibiotics that would never kill this infection.
Finally i was referred to a Urologist, i was thankful because he gave me the proper anitbiotics, and cleared my infection at last....of course that wasn't the end of it. Now, a little over a year later, i have had sporadic symptoms of a UTI, and i would always have my urine tested, and cultured and nothing grew. So here i am with these horrible symptoms and no infection present. I feel like i have heartburn inside my bladder. Sometimes i feel like i have a hair sitting in my urethra.
I have had a voiding test, that wasn't it. An IVP, nothing was found. I had an MRI done, no problem presented itself there. The next test my Urologist wanted to do was a cysotscopy but i just blew it off because i was sure they wouldn't find anything there as well. But i always thought that was the test i needed in the first place so i am going to consider getting it done.
I have been reading about other things, after months i've tried to ignore this and figure it's no big deal but it's really starting to worry me now. I read things about other diseases that mask itself as IC. I've never been promiscuious, and i have never had a genital herpes blister, and neither has my partner, but sometimes i wonder if my symptoms are from something of that nature. Does anyone know the likelyhood of that?
See what i mean, i totally wrack my brain at trying to figure out what is wrong with me. I feel for anyone who has this problem no matter what age they are. I've had this for a year now and i'll be 21 in a few weeks. I've been on Bactrim that i take after intercourse. This prevents me from actually having a bacterial infection. But the pain stays.
For the pain i take Urised but it is hard to take the pills four times a day. Whenever i think i can stop the Urised, the pain creeps up again. Sometimes i go weeks with just a tiny twinge here and there and it doesn't bother me, but this sneaky IC always comes back full force. It just doesn't seem right to have to keep taking those pills!
I'm curious to know how everyone elses IC started. Doctors tell me that the repeated doses of antibiotics shouldn't have ruined my bladder lining, so what is it from!!!! thanks for listening [img]smile.gif[/img]
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