Announcement

Collapse
No announcement yet.

DIAGNOSIS

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    DIAGNOSIS

    Hi I'm new and I'm so confused. Month's ago I started with severe pain in my right side so I was sent to a gyno, when he examined me he said the pain was coming from my bladder. So i was sent to a urologist, right away he said i had ic, so I've had a cysto and a bladder biopsy. Just came back from getting my results and it showed I have chronic cystitis WHAT'S THE DIFFERENCE.
    He has ordered for me to have 6 weeks treatment of DMSO.
    Could someone help because my family doctor knows nothing and my urologist seems to have no time to sit and talked.
    I'M SO CONFUSED AND I DON'T KNOW WHAT TO EXPECT.
    THANK'S EBONY63
    Tags: None
  • #2
    It sounds like he thinks you have IC since he is ordering the DMSO. Has he had you try any of the oral meds?

    I wonder if you could call his office and ask for some clarification on your diagnosis?
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

    Comment

    • #3
      Hi,
      I wanted to welcome you to the board. I agree with Kim to call and get clarification. If it is IC, reading the Handbook on this site will help. You will find out about all the different treatments and diet. Diet is real important to most of us and helps us to control our symptoms. I wish you well, and again, welcome.

      Jolene hi
      Jolene

      "Life is what happens when you are making other plans" John Lennon

      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

      Information for Patients can be found here.
      http://www.ic-network.com/patientlinks.html


      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

      Comment

      • #4
        I absolutely agree. My suggestion is to call the uro and ask simply, "Do I have IC?" You should be able to get an answer.

        Sending warm healing thoughts,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          I would definately call. In my ob/gyn's office there is a pic on the wall that shows 'chronic cystitis'. I wonder if there is a difference? All my troubles started the exact same way-with a pain in my right side. Good luck!
          Jen


          "When you get to the end of your rope, tie a knot and hang on" -Franklin D. Roosevelt

          Comment

          • #6
            I have never heard of the term chronic cystitis used to describe IC. That usually means you have frequent bladder infections. But DMSO is not used for those so he must mean you have IC. Did you have a hydrodistention?

            Comment

            • #7
              In my opinion, the trust that you have with your doctor when you have IC is the best treatment ever. If you have trouble getting your doc to explain things to you, or you feel that you are not being treated right, you should find another doctor. I found a great IC specialist in Memphis, TN. her name is Dr. Ragi Wiygul and she is the best doctor and a complete god send. She does not believe in letting her patients suffer with pain. The best thing that I have found for the pain, besides narcotics is trigger point injections, does anyone get trigger points. It is like immediate relief for me! The needles are painful, but when it is over for almost two (2) weeks I am almost pain free. Also, diet and Yoga are a great help for me to control my symptoms and pain. I had an interstem unit installed last July and that has helped with the endless trips to the bathroom, but unfortunately, I have to be on pain meds. and get really sick of having people make me feel bad for having to take them!!
              Also, I hear quite often alot of people have the pain on the right side, that is where mine is primarily.

              Best of Luck,
              David White

              Comment

              • #8
                THANK'S TO EVERYONE WHO E-MAILED BACK IT FEELS GOOD KNOWING I'M NOT ALONE.
                COULD SOMEONE WHO HAS HAD DMSO DONE E-MAIL ME AND LET ME KNOW WHAT TO EXPECT AFTERWARDS BECAUSE I WORK FULL-TIME AND CAN'T MISS WORK.
                HAS ANYONE FOUND THAT THIS HAS HELPED THEM?
                THANK'S AGAIN

                Comment

                • #9
                  Hi Bandit63: hi

                  Regarding DMSO, when the fluid was inserted into the bladder via a catheter, it just irritated my bladder more. eek My urgency and frequency got worse for one to two days after each treatment. The nurse at the urologist's office told me that this was part of the healing process, but I just couldn't tolerate the side effects. It drove me nuts at work! banghead I also work full time. Fortunately, my supervisors and co-workers are supportive and understanding about my frequent bathroom trips but I didn't want to continue with a treatment that just made me feel worse. There has got to be something better and more sane out there somewhere and hopefully I'll find it some day soon and share it with all my IC buddies here.

                  I should also point out that other IC patients who have posted like DMSO and did fine with it so everyone reacts differently to different medications. Maybe it's right for you, maybe it isn't. The only way to know if anything works is to try it. If you decide to try DMSO, I would recommend having it done on a Friday after work if possible so you can have the weekend to recuperate and be alright for work on Monday.

                  Good luck and take care,

                  Zanni2 angel

                  Comment

                  Previous template Next
                  Working...
                  X