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  • #16
    I am currently taking Elavil, Elmiron, Detrol LA and Atarax. I also take Prelief before some foods or drinks. So far this has worked tremendously.



    • #17
      Holy moly Rachelm!! How do you do 100mg of Atarax without drowning in your own drool? They had to reduce mine but I extremely anithistmine sensitive.

      Anyway, ihateic, I take (at the moment...could change withthe blowing wind) 25 mgs atarax, 30 mgs MS contin 3x/day, 5 mg valium 3 times /day, topamax 50 mg, lexapro 10 mgs...

      I also take prerelief when I know I'm going to consume something nasty or that coffee just smells too awesome.

      I have a variety of supplements/vitamins I take...sure helps my blood work. My doc says my blood work is better than 99% ofhis patients...It includes Quercitin which is a natural antihistime. Ionly take 500mg because I also take the atarax. But, it doesn'tmake me sleepy....for bladder help I take zinc, Co Q 10. I have a bunch of others that are just for general health. I make sure they don't interfere with my reg. meds.

      Treatments: inflation , cysto, : pretty much did nothing but cause pain

      PT/Pelvic Floor work: awesome...specially if your pain has you house bound and weak. It strengthens you.

      TENS: I like it. Just remember not to grab the pads with your fingers, and not to let the stupid things get caught in your pubes! it hurts like heck. eek

      Back brace: Nice...helping me for long walks, shopping etc..

      Butt pillow from IC store. VERY COOL for the car. definate thumbs up. Need to do it. It absorbs all those nasty road bumps my less than luxiourious Ford Ranger absorbs. Yowie;

      Doc wants me to try to DMSO..I'm very reluctant. They also are going to do the Nerve Thingy. I will allow it if I am relaxed and don't know.

      That's my history. That's Been since about Julyish. blink

      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

      Medications I CURRENTLY take:
      90 mgs Ms contin (45 mgs Am/PM)
      Percocet as needed
      Topomax 100mg day
      Ambien 10 mg bed
      desipramine 25 mgs

      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
      Albert Einstein


      • #18
        I started off with 50mg of attarax for about a year. I take it at night and at first I got a nasty hangover type feeling every morning but gradually it got better. I was usually out within 15 min. of taking my night meds. but now they don't knock me out so quickly. During my first flare of this season my uro suggested that I up my attarax to 100mg. I was very hesitant so I waited until I had several days off work to experiment. At first I only did when I didn't have to work the next day but now I do it all the time. I don't know if it is helping because I'm in the midst of a bad flare that nothing seems to give me relief except for pain meds for a while. I hope in the long run it will prevent seasonal flares.


        • #19
          what is test interstim? new at ic


          • #20
            thanks so much do they usuallaly wait til u have been on elmoron for a year befor they try dsmo?


            • #21
              I am on 600 mg of Elmiron, antibiotics, Hyoscyamine, GERD Meds-Prilsec OTC, Calcium, Neurontin.

              I am doing DMSO

              Yes I feel treatments help and then don't help so much for me.
              Searching for more treatment atm.

              Hope you all have success with your treatment

              Faith, Hope, and Love,

              I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              or find me on facebook
              Be the Miracle! & Pay it Forward!

              [email protected] please contact me...I am here to help!


              • #22
                For IC: 600 mg/day of Elmiron, 25 mg Atarax each night, 0.4mg Flomax at night, 15 mg MS Contin 2x a day (with option to take 30 mg 2x a day if pain is bad), Lortab 7.5's for breakthrough pain, Pyridium as needed for urethral burning. In addition I'm starting PT on Sept. 1 for PFD -- we'll see how that goes. I have had 1 hydro, and 10 DMSO instills in the past, but neither seemed to help that much, so right now I'm not doing them.

                For chronic myofascial pain: 4 mg Zanaflex as needed for muscle tightness/soreness, Lidoderm patches for superficial pain as needed, lidocaine trigger point injections at doc's office periodically.

                For asthma/allergies: Advair 100/50 2x a day, 10mg Singulair at bedtime, Combivent inhaler as needed, Nasonex nasal spray 2x a day, Clarinex as needed (although I don't use it as often now that I take Atarax at night), allergy shots.

                Other: birth control pills, Maxalt for migraines as needed, and on Sept 1, my therapist has arranged an appointment with her psychiatrist colleage to get me on on some meds for anxiety disorder. I don't know what they will be, but hopefully they will help me quit worrying about everything continuously

                That is a lot of pills. YUCK

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                • #23
                  I'm so sorry that you are feeling this way. Yes...I have gone through the very same things. I have had IC for 15 years. I have had several DSMO treatments-14-and they really didn't help. I seem to be at the same place you are. I now take several oral pain meds but feel that I am almost immune to them. I live with daily pain and son't stop trying until I find help. Good Luck, honey. Don't give up!!


                  • #24
                    I was on DMSO for a year and it worked but then my system became immune to it. I have now been on elavil for 6 years (working down from 50 mg to 5 mg) and am doing great.


                    • #25
                      I have had IC for 17 years. I just follow the IC diet.......most of the time. I have my share of symptoms, but they are more often than not, mild. I had to follow the IC diet very strickly for about 4 years because my pain was so bad at one time, but I think following the diet helped my bladder heal some, and allows me to cheat here and there now with a lot less pain. I tried Elmiron, didn't work for me. I use a birth control pill, which I think may have helped make my bladder just a tad less touchy.
                      Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."
                      Mary Anne Radmacher