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New to this site this is my story.
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I was diagnosed with IC one year ago. It began when I was only 16 years old. I was taken to University of Tennessee Hospital with massive bleeding during urination. I could not stand, sit, sleep all I could do was cry. In the ER I was taken immediately to a room where they stared injecting me with this fluid that show up under x-ray. They had determined that I had a serious UTI infection. They tried to tell my parents I may have been sexually active during the past month which cause my UTI infection.
My parents knew better! I was a virgin and had never been with anyone. It was a pact I had made with myself and god I would never have relations with a man until I was married.
Back to my story, at this point I wasn't having any problems, then the next morning I awoke to the horror of my first UTI.
Off and on I continued having yeast infections. Then years later with the birth of our first child I had the began having more UTI infections. Another one at 17 another during my 8th week of pregnancy and then finally at least 3 times a year their after.
I am 25 now and over the last nine years I have had over 25 UTI infections. Last year finally my Physician noticed the Urine tests were normal. After being seen by a UTI specialist I went through the testing and was confirmed I had IC. Well my first thought was Thank The Lord it has a name.
After that I was sickened by the treatments that followed. Three times a week I had a bladder a wash for about a month. Then I began to catheterize myself twice a week. I prefer doing it myself for 2 reasons. 1-Its not as embarrassing and number 2-it doesn't hurt as much when I do it.
I take Hyoscyamin----Hydroxyzine---Pyridium---and allegra. I have really bad allergies and I was informed that most IC patients have allergy problems that can induce the irritation of the bladder.
Every three months I have my bladder distended. It puts my bladder in a state of shock for about three months then I go back for another one. It was working very well for a while then my last treatment failed. The only thing I disliked about the treatment was that I smelled like garlic for about 4 days.
Well I was doing really well for a while but now I am always hurting. I constantly have bladder spasms and have begun having spasms in my bowel area again. My UR is baffled and hasn't one solution for me. I only eat what agrees with my bladder. Suddenly here I am again right where I started.
I have taken just about everything out of my diet but even that hasn't helped. I don't know where else to turn. Its very depressing as we all know.
I would like to know how everyone else deals with their IC. I know I am not the only one that has been through this. Its wonderful that their is a message board for us to speak freely.
But I get very sad because I want to be active with my child and I am always in so much pain. My husband is very supportive, I am very lucky to have him in my life. He is a huge help to me when I am not feeling well. And I just hope everyone else here has someone like that too.
God Bless Tara
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I was diagnosed with IC one year ago. It began when I was only 16 years old. I was taken to University of Tennessee Hospital with massive bleeding during urination. I could not stand, sit, sleep all I could do was cry. In the ER I was taken immediately to a room where they stared injecting me with this fluid that show up under x-ray. They had determined that I had a serious UTI infection. They tried to tell my parents I may have been sexually active during the past month which cause my UTI infection.
My parents knew better! I was a virgin and had never been with anyone. It was a pact I had made with myself and god I would never have relations with a man until I was married.
Back to my story, at this point I wasn't having any problems, then the next morning I awoke to the horror of my first UTI.
Off and on I continued having yeast infections. Then years later with the birth of our first child I had the began having more UTI infections. Another one at 17 another during my 8th week of pregnancy and then finally at least 3 times a year their after.
I am 25 now and over the last nine years I have had over 25 UTI infections. Last year finally my Physician noticed the Urine tests were normal. After being seen by a UTI specialist I went through the testing and was confirmed I had IC. Well my first thought was Thank The Lord it has a name.
After that I was sickened by the treatments that followed. Three times a week I had a bladder a wash for about a month. Then I began to catheterize myself twice a week. I prefer doing it myself for 2 reasons. 1-Its not as embarrassing and number 2-it doesn't hurt as much when I do it.
I take Hyoscyamin----Hydroxyzine---Pyridium---and allegra. I have really bad allergies and I was informed that most IC patients have allergy problems that can induce the irritation of the bladder.
Every three months I have my bladder distended. It puts my bladder in a state of shock for about three months then I go back for another one. It was working very well for a while then my last treatment failed. The only thing I disliked about the treatment was that I smelled like garlic for about 4 days.
Well I was doing really well for a while but now I am always hurting. I constantly have bladder spasms and have begun having spasms in my bowel area again. My UR is baffled and hasn't one solution for me. I only eat what agrees with my bladder. Suddenly here I am again right where I started.
I have taken just about everything out of my diet but even that hasn't helped. I don't know where else to turn. Its very depressing as we all know.
I would like to know how everyone else deals with their IC. I know I am not the only one that has been through this. Its wonderful that their is a message board for us to speak freely.
But I get very sad because I want to be active with my child and I am always in so much pain. My husband is very supportive, I am very lucky to have him in my life. He is a huge help to me when I am not feeling well. And I just hope everyone else here has someone like that too.
God Bless Tara
[img]confused.gif[/img] [img]rolleyes.gif[/img]
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