No announcement yet.

I'm back!

  • Filter
  • Time
  • Show
Clear All
new posts

  • I'm back!

    I just wanted to say HI to everyone and that I have missed being around the last few weeks. I have been in the worst flare of my life. The past 2 weeks are just a blur in my memory now. I am some better now but am looking for a new doctor as well as new treatment ideas. I have exhausted everything that is considered mainstream treatment. Anyway, you probably didn't notice I was gone but I did miss "talking" with everyone. I hope to be around more now.

    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    I Did notice you have been gone and was hopeing you was doing better the reason you was missing so sorry that wasn't what was going on if you need me please pm me my old email address has changed so if you would like my new email just pm me
    grouphug Rhonda
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.

    I have IC, but IC doesn't have me anymore!


    • #3
      Hi Mom,
      glad your feeling better, hope that you don't get back into another flare.
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4
        Hi Pam,

        So glad you are back, and yes we noticed!!! You just need to take care of you, okay? grouphug

        Hugs and love,
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


        • #5
          Hi Pam, glad you are back, sounds like you have had a wretched time with the old IC flare. Hope you can start to feeling a whole lot better, take care of yourself, hugs Iris. hi grouphug
          Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


          • #6
            You might check the physician listings on this site to see if there's one in your area. These are doctors who have been recommended by other IC patients.

            I hope you feel better soon --- and that you find a physician soon.

            Warm healing thoughts,
            Stay safe

            Elmiron Eye Disease Information Center -
            Elmiron Eye Disease Fact Sheet (Downloadable) -

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help:


            Diet list:

            AUA Guidelines:

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Anyone who says something is foolproof hasn't met a determined fool