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Just wanted to share my story with you all
Hi you all know me by now, I am 43 years old, I started having utis when I was 18 years old and most of them came back no infection. My pcp refreed me to a urologist, I went and saw my first urologist in the 20's, he did a cystocopy and hydro, I was awake for it , I chose that, alls they said it was chronic cystitis.Ok, never went back to that doctor. Then years later, I got a kidney infection and ended up hosptialized, and saw that dr again, didn't see anything kindey stones or anything wrong. Ok then in 98, start with the chronic utis, and my new pcp sent me to two urolgoists who said I had ic but thought thepain was something more. Ok, got new insurnace and then went back to my old pcp and went to another urologist in norwood, got chronic utis and stones over the summer last year. uro put me on elemrion and atrax. no pain pills. says ic doesn't cause pain. he did a cysto and hydro, said I had ic and small bladder. Ok, went back to him for a few times and said he couldn't do anything more for me, sent me toa pain clinic, they talked about a nerve block, no thankyou. never gone back. I finally found this urologist who is listed under physicans who treat ic and ic patients and is wonderful and compassionate and bleives that ic is painful. He has put me on neurotin 100 mg 3x a day, prosed, impraine, it seems to be working. I do flare and have pain. when I get a uti, my groin area acts up so bad, they give me percocet. I am going for bladder supension on friday. He has been talking about the insterim with me and I said noto that right now, I said let try meds and bladder supesnion and then I will think about the intersim. He said ok. He is willing to try anything and doesn't push anything on you. He has a wonderful pa too. she is nice too
I have 3 sisters and one brother, 5 nieces and 2 nephews. ages 16-4. I live with my Dad and his girlfriend.
My ic is back full force and I have good and bad days. I like to post and help other people and get out of myself.
Like I shared with Lesile on another board, I do have a learning disability and have grown alot from it.
thankyou for letting me share my story.
I have 3 sisters and one brother, 5 nieces and 2 nephews. ages 16-4. I live with my Dad and his girlfriend.
My ic is back full force and I have good and bad days. I like to post and help other people and get out of myself.
Like I shared with Lesile on another board, I do have a learning disability and have grown alot from it.
thankyou for letting me share my story.
It is sad that you had a bad uro, but at least you've got one that's willing to listen to you! 
I hope everything goes ok for you tomorrow, I will be praying for you! You are such a sweetie, always trying to help everyone out. You are a brave IC fighter, and we all love you! 
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