Hello everyone, its been so long since ive posted... I hope this finds everyone doing well. Ive had IC for sure sine June of 2000. Im 29 years old now-and it began at 27. My urologist feels that most likely ive had it since the age of 18, when I began having UTI's consistently. In 2000-is when a UTI hit-and seemed to never go away-or at least the symptoms didnt. On top of being a million times worse-then the previous UTIS. Ive had tons of doctors-who have tried every medication possible known to man or so it seems. My main problems being burning, extreme pain, and pressure. The frequency for some reason seems to be lessened-with my Pain meds? Ive been on so many medications-a few months ago-I was on 26 different meds daily-and at that point. I finally said enough was enough. I do have alot of other health problems-that began when the IC did-I now have IBS-and Fibromyalgia-my immune system seems to be shot. I am sick all the time-with UTI's-Kidney Infections-Ear Infections-you name it, it seems to happen-even jaw infections-that no one can figure out why? My monthly cycles have been so messed up since this all began-and always seem to cause my symptoms to be worse. My doctors have now decided I need a full Hysterectomy-there hoping this will help to alleviate some of my symptoms? Im so scared that its going to make me worse.. Ive had two cystoscopies one with hydro-that only seemed to worsen me. Also laproscopy, and hysteroscopy. And a jaw surgery-after each im so ill. IT takes weeks to get back to what I was before. Even just having my yearly women exam-placed me in such a horrific flare-I was just placed on Prednisone-a week or so ago-for yet another jaw infection-and ended up flaring so badly I really thought I was dieing, it was that bad... and all I had taken was two dosages. I have stuck to the IC diet-and do notice alot of foods will trigger my problems to worsen. I feel so angry and depressed most of the time. I dont get good sleep ever.. The pain and pressure-seem to run my life. I have had several primary physcians-and gynecologists-and urologist-to try and find the best care possible. I am lucky that I have found a doctor who truly cares-and works her hardest-to help me lead a better life-but we have tried everything-the latest med has been the Cysta Q-and sitll no luck.. I also havent been able to work-or do anything physcial-Any activity makes me hurt even worse. Basic things like shopping-Kill me. I feel so ill all the time-like the flu but worse. I have a careprovider that comes in daily-to help with cooking and housework etc. I no longer can drive-and even riding in a car-makes frequency and pain worse. I have tried so much-and just want a life again. I have two children 6 and 9. And I cant even be a normal mom-Im a wife, who cant even have intamicy, my husband is great-but I feel everything slipping away. I just dont know what else to do? I cant imagine the rest of my life like this-somedays I wish that IC would just end my life. Anything would be better then the suffering. I would never do such a thing-I just dont know what else to do-or where else to turn. Ive had all the tests-and medications-ive even tried acupunture. anything to relieve this nightmare. If anyone has any suggestions-id be ever so grateful. Sorry for being so down, and thanks so much for being here-its so wonderful to have people who truly understand... Big Hugs and healing prayers to all.. ) [email protected]

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