terrific IC letter!!!!!!!!

[tcbc1989]

Gywn,
What a wonderful letter. You put into words what I feel exactly! I hope you are feeling better......Today: I am having a good day and hope the same to you, Tina Carlson hi

thank you !

i am soo glad you all liked it...

now we just have to hope that the normals have enough patience to read it all!!! LOL wink

[Flore]

Gwynn

Woooow!!!, I´m not a person who cries very often, and I don´t know what feeling I had that you made me cry!!

Thanks for this letter, I think is great!!

I´m sure that all the Icers are a very strong people, and we have the prove with your letter

Thanks again!!!!!!!

[Britgal]

Hi Gwynn, really enjoyed your letter, I am going to print it out and carry it with me in my purse, so many people say oh yes I have heard of that, they think it is just cystitis and you have to go into lots of explaining about it is different to cystitis and it is a chronic illness that is with you all the time. Like you expressed because we are smiling and out there doing normal everyday things doe not mean we are not in pain, excellent letter, way to go Gwyn. Love Iris, Britgal.By the way I loved it when you remarked about being in the toilet and calling it the loo, that is what it is called in England, where I am originally from. Take care, hi blink hat

thank you ALL....
i am glad you liked it..

ps sheri.. i have sent you the invite to the photo forum MORE than 3 times!!!!!!!! have you received it???

[auntiedeb]

GWyn great job on the letter. You did it. thanks for sharing. You are an angel. angel

[peealot]

Gwyn,
I think you did a great job on your letter. I am not ashamed to share my illness with people I work with so I have told them what I go through. It is amazing that they can hear what I say but not quite get it. However, one of my co-workers found an article in a magazine and read it. She was very understanding after reading it. I carry that article with me now in my purse. It gets our point accross.

Kristi grouphug

[peiti]

Considering the sufferings we have every day. We are so brave, aren't we?

[sandram333]

Excellent letter Gwyn! U took the words right out of my mouth! Love Sandra! grouphug

[Kelli]

Gwyn,
I think the letter is just perfect. You said everything you feel without going on and on about one particular thing. Maybe we can use that letter as our IC letter to Normals. It really talks about the depths of IC and how it makes us feel everyday. I think it's an EXCELLENT letter. WAY TO GO GWYN! I'm very proud of you for writing this. Not only will this help your friends and family to understand, but it also will help you to get things off your chest.

Love and Hugs,
Kelli

[SheriG]

Hi Gwyn! hi First off, please let me say that I think you are just adorable (and I still havent gotten into the photos)That letter is remarkable, straight from the heart. How lucky we all are to know you my friend! grouphug Sheri

[tigger_gal]

hi gwen,
that was agreat letter
brat

[Kim Schy]

Gwyn,
That is such a great letter. Thanks for sharing.

I also want so badly to make people understand my condition better. Last week at work, someone said to me "You don't mind if I tease you about not being able to drink coffee like the rest of us, do you?" I said "no, not at all", but what I really wanted her to know is that I hurt even when I just stick to water. I thought then, one of these days I'm going to give my co-workers a printed out info sheet on what it is I have to cope with day in and day out.

You have paved the way. Many thanks.

Lyn

[buffy]

Great work Gwyn, I especially liked the part about sounding and looking healthy, doesn't mean we are not in pain or getting better. That's the part most people don't seem to understand.

[ICNJess]

Gwyn--
You are so wonderful! What a great job!!!

Hugs,
Jess