Hello everyone,
My name is Tina and I am 24 years old. Married for almost 2 years this May and have an adopted child on the way.
I had a cystoscopy/hydro distention last April and was diagnosed with IC. It has gotten worse and worse and no meds. seem to be helping me. I just had my second cystoscopy/hydro distention on March 21 and am not doing very well at all. I received some bad news. My dr. told my husband that I have a small bladder only 100 cc, I have a severe case of IC and that there are only a few more meds. to try and then she will have to remover my bladder. I wasn't awake yet, so I didn't get to talk with my dr. about any of this. I have cried and cried, I am only 24 years old and I have to worry about having my bladder removed and worry about having to cath myself for the rest of my life.
I just found out about the IC diet from a friend who believes she has IC also. My dr. never told me about any diet. I go to the Cleveland Clinic the #3 best hospital for urology in the world, why did I never hear of this diet before?
I am so happy to have found this board, I have been reading all the post and all of you sound so much like me. I feel I have people to talk to now that know exactly how I am feeling. It is tough having to void every 15 minutes of my life. It ruins my everyday living and is hard. Like I said we are in the process of adopting a newborn baby boy and I am scared to death. We have been in the adoption process for 16 months and they have finally found a baby for us and now I find this out about my bladder. Maybe someone can give me some advice about having IC problems and raising kids.
I also have Endometriosis, I was diagnosed with that at age 16, I have heard that IC women with Endo. tend to have IC too. I was wondering if anyone has endo. too?
One more question (sorry) Has anyone ever tried Neurontin? That is what my dr. is having me try 300 mg. 3 times a day.
Thank you so much for reading my long story. I hope that you can give me some advice or just support. I believe in the almighty God very much and I will say a prayer for all of you who suffer from IC. I know how awful it is.
Love, Tina
My name is Tina and I am 24 years old. Married for almost 2 years this May and have an adopted child on the way.
I had a cystoscopy/hydro distention last April and was diagnosed with IC. It has gotten worse and worse and no meds. seem to be helping me. I just had my second cystoscopy/hydro distention on March 21 and am not doing very well at all. I received some bad news. My dr. told my husband that I have a small bladder only 100 cc, I have a severe case of IC and that there are only a few more meds. to try and then she will have to remover my bladder. I wasn't awake yet, so I didn't get to talk with my dr. about any of this. I have cried and cried, I am only 24 years old and I have to worry about having my bladder removed and worry about having to cath myself for the rest of my life.
I just found out about the IC diet from a friend who believes she has IC also. My dr. never told me about any diet. I go to the Cleveland Clinic the #3 best hospital for urology in the world, why did I never hear of this diet before?
I am so happy to have found this board, I have been reading all the post and all of you sound so much like me. I feel I have people to talk to now that know exactly how I am feeling. It is tough having to void every 15 minutes of my life. It ruins my everyday living and is hard. Like I said we are in the process of adopting a newborn baby boy and I am scared to death. We have been in the adoption process for 16 months and they have finally found a baby for us and now I find this out about my bladder. Maybe someone can give me some advice about having IC problems and raising kids.
I also have Endometriosis, I was diagnosed with that at age 16, I have heard that IC women with Endo. tend to have IC too. I was wondering if anyone has endo. too?
One more question (sorry) Has anyone ever tried Neurontin? That is what my dr. is having me try 300 mg. 3 times a day.
Thank you so much for reading my long story. I hope that you can give me some advice or just support. I believe in the almighty God very much and I will say a prayer for all of you who suffer from IC. I know how awful it is.
Love, Tina
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