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  • New to the group

    While I was diagnosed almost a year ago with IC, I just found this site!
    I have found some food triggers, but there must be more I can not figure out, since I have flares, remissions (one month was the longest) then flares again.
    On Atarax 10mg at night. Does this seem like a low dose?
    I am use to the bladder and urethral spams , urine leaking, and getting up at night with urgency, but recently have had very sharp pains shooting up from vaginal area to middle of stomach. Is this common?

    The one thing I have found that helps is acupuncture and guided imagery, but it is very expensive and insurance does not cover it ($160.00 a session)

    I am so glad I found you!

  • #2
    to the ICN

    We're glad you found us!

    The vaginal/stomach pain you describe is quite common in ICers, but if it is new for you, you may want to mention it to your doctor... just to be safe and make sure nothing else has gone wrong.

    As for the Atarax dose, I take 25 mg at night, and I know some take up to 50 mg... and some take 25 at night and 25 in the morning. It really varies. If you're still having some bothersome symptoms, and Atarax used to help a lot, you might want to ask about increasing the dosage. Sometimes our bodies "get used" to medications and we have to change up our regime a litte.


    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      So glad you found us!

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


      • #4
        Count me in too as for being glad you found us!! I take 25mg Vistaril (Atarax's cousin - just a little bit different formulation of hydroxzine, lol) at bedtime, and have even taken 50mg a day during high allergy season.

        Welcome to the gang!!!!
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!

        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:

        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS