Pelvic pain but NOT frequency...anyone?

[soccermom32]

Hi again!

Does anyone have general discomfort in lower abdomen without the frequency and/or painful urination?

That's my complaint and haven't officially been diagnosed yet other then with ovarian cysts and uterine fibroids. Still trying to sort it all out. I see a urologist who specializes in IC on March 1st.

This sight is SO helpful!

[Sarojini]

Yes, there are IC patients who have ONLY pain as their main complaint. So, I would go ahead and see the urologist to be sure.

IC is weird; some have only frequency or frequency/urgency; some have just pain, some have the whole can of worms... it's different in everyone, and that can make it hard to diagnose right away. Hang in there and let us know how it goes And if you have questions, ask away.....

[turnaround]

My symptoms are pain and heaviness, but no frequency or urgency. I was diagnosed with IC, so I know for sure there are different symptoms for different people.

[GriffsMommy]

Mine can vary, sometimes I just have pelvic pain and sometimes I have frequency and urgency. I'm having a ton of pelvic pain at the moment, the fun never stops

[DaniBelle]

Possibly..

....endometriosis? If you're not experiencing u/f or painful urination and have a history of uterine fibroids and cysts, I would think endo could be a possible reason for the pain you're experiencing. Do you have any burning at any time whether you're urinating or just sitting? Endo is a tricky thing, as it mimics IBS, IC, etc.. My Gyn is looking into another lap. surgery because I have that 'old familiar feeling'. Even though all my female organs are completely gone (finally), endo can still grow on other organs. I hope you don't have it, but just suggesting you ask your doctor about the possibility. Best of luck to you....and prayers!

Danita

[CarolinTexas]

My problem took a long time to be diagnosed because it was mainly pelvic pain.

Last year I had a CT that revealed ovarian cysts, cysts & endo removed, IC suspected, then a hysterectomy in December. Still have pelvic pain after all that.

The only times I have external pain (horrible clitoral!) and urgency/frequency is in the middle of the night if I drink wine or food with certain preservatives.

My pain is getting better with exercise, massage, trigger point and meds but is always worse after urination (internal pain, not external) and after (not during) sex. I'm also trying out a systemic/intestinal candida treatment as that can cause abdominal pain and sometimes be mistaken or a cause for IC.

I sympathize with you! Good luck with your treatments! PM me anytime!

[mrsaridings]

I do, but like another said, mine too varies (depending on diet and etc..). I started out just having like the burning, stinging, acid needles when I peed and thereafter feeling, and every now and then I had some back and abdominal pain. I also have problems with ov. cysts. I had surgery when I was only 17 due to cyst rupturing, blood trans. and all. My whole life I have had pain w/ that so when I had pain w/ this IC I just at first assumed it was due to that. Anyway, I didn't have the urgency problems until my 1st daughter was born. My x-dr, told me it was just because having a baby tilted me or some junk, but after my 2nd angel I started having a lot of pain, and the burning as stated above, that is when it seemed to get worst. I was diagnosed in nov. and and they tried a lot of things so now I will soon be taking Elmiron there is a video to watch with the pamphlet and stuff and it really describes a lot of the different symptoms and stuff. I didn't have any frequency though, hardly, until this month after my biopsy since the 9th that's all I've had is frequency and I have a lot of lower back pain too. I am optimistic though after being on this site that things will get better. They have to, cuz I just don't think I can stand to live with this kind of pain and it is really hard to enjoy your life and children when all you do is hurt.

[RAS6]

That's how it started for me almost two years ago: just pelvic pain. The frequency, urgency, and painful urination came several months later. It wasn't until I had other symptoms that I finally got an IC diagnosis, but I have heard of many patients who were able to with pelvic pain and pain after sex only. Pelvic pain is still my biggest complaint, even thought the others are bad as well! I do have PFD as well as IC, may be something you could look into....
Hope you find some relief soon!

[CarolinTexas]

Hey soccermom, one more thing. My pelvic pain didn't cause frequency or urethral pain until one ob/gyn (who suspected ic) really messed with the bladder during the pelvic exam. He was trying to cause a response and I have never gotten over it.

Ask your ob to be gentle in pelvic exams!

[topcop229]

Soccermom,
I don't have frequency/urgency either. I suffer from abdominal and lower back pain, bladder spasms and urethral pain, retention, lack of ANY urge until post-void, whether it's a normal void or I have self-cathed, and severe PFD. I was diagnosed via the Potassium Sensitivity Test and later a cysto/ hydro. IC really is different for everyone.

Good luck with your appointment. Hopefully your doc can find out exactly what's going on and get you on a path to feeling better!

[ascatts77]

My biggest complaint since this all began for me almost 3 years ago has been chronic pelvic pain. I also have trigger points and pain and extreme tightness along the right side of my back (thank goodness for a wonderful fiance who gives great massages) I currently am going thru my first flare with frequency and urgency!! b/c I never had those symptoms it took them awhile to pinpoint. After ruling out a million other things, my doctor began to see thru the questionaires at every visit, that I was suffering from nocturia (frequency at night). I never saw it as a symptom, b/c I think I have always been that way!! And as I have learned from these message boards - IC varies so much per person, it seems no sympton can be wrong!

Hang in there! I wish you all the best dealing with that pain!!

[mary124]

I have a little of everything, pelvic pain, urgency/frequency. My husband kids me when we go to Houston to visit my family that on the way we know every clean restuarant/gas station along the way! (I know the last thing I do before going to work and the first thing I do when I get to work is go to the bathroom -- as its easily an 1 hour drive-unless there is a lot of traffic or something holding us up and then its alot more).

Right now, I'm in the middle of having a lot of frequency, especially at night, the doctor has me on zanaflex and between that and my migraine medicine you would think I would sleep through the night- I think I sleep about the first 3 hours still and after that I STILL get up every hour or so and by Wed., I am too tired to even want to get up and go to work. Today is a State holiday for Texas ( Texas Independance Day) but we have to have some staff here, and since theres not too many people who knows what I do, I'm it.

Anyway, just hang in there, it does get better.