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Hey everyone,
I am new to the board, although I have been diagnosed with IC for 3 years. I have really enjoyed reading all of your posts and it has made me realize how lucky I was to get diagnosed so quickly. I was a college student at the time, and going to the Student Health clinic for exceedingly painful frequent bladder infections despite the fact that I was NOT sexually active (student health clinics tend to blame everything on sex). Anyway, when I also started having pelvic pain, one of the student health Drs. said to me, "I just read an article in a journal on something called Interstitial Cystitis. I really hope that you don't have it, but I'm going to send you to a uro. just to rule it out." Anyway, my uro. did the cystoscopy exam in the hospital a month or so later and I was definitively diagnosed. He put me on Elmiron right away, and gave me the IC diet information. The Elmiron really helped me out and 9 months later he took me off of it in lieu of just trying to treat it with diet.
Anyway, for some reason, I have been having MAJOR flair ups a lot again in the last 6 months or so and I have made an appt. to see my uro again to get back on Elmiron. I was wondering, however, if there is anything like an IC cookbook out there that we can buy? I have used the "Whats Cookin'" page on the IC Association page a number of times, but I would really like a BOOK that I can flip through and keep in my kitchen. Does anyone know of one? I am married now, and I want to keep a good diet for both me and my spouse despite the fact that I am SO restricted.
Its wonderful that youre all here, there is SO much more info. out there on this condition than I had realized.
Thanks for all your posts,
Ellen
I am new to the board, although I have been diagnosed with IC for 3 years. I have really enjoyed reading all of your posts and it has made me realize how lucky I was to get diagnosed so quickly. I was a college student at the time, and going to the Student Health clinic for exceedingly painful frequent bladder infections despite the fact that I was NOT sexually active (student health clinics tend to blame everything on sex). Anyway, when I also started having pelvic pain, one of the student health Drs. said to me, "I just read an article in a journal on something called Interstitial Cystitis. I really hope that you don't have it, but I'm going to send you to a uro. just to rule it out." Anyway, my uro. did the cystoscopy exam in the hospital a month or so later and I was definitively diagnosed. He put me on Elmiron right away, and gave me the IC diet information. The Elmiron really helped me out and 9 months later he took me off of it in lieu of just trying to treat it with diet.
Anyway, for some reason, I have been having MAJOR flair ups a lot again in the last 6 months or so and I have made an appt. to see my uro again to get back on Elmiron. I was wondering, however, if there is anything like an IC cookbook out there that we can buy? I have used the "Whats Cookin'" page on the IC Association page a number of times, but I would really like a BOOK that I can flip through and keep in my kitchen. Does anyone know of one? I am married now, and I want to keep a good diet for both me and my spouse despite the fact that I am SO restricted.
Its wonderful that youre all here, there is SO much more info. out there on this condition than I had realized.
Thanks for all your posts,
Ellen
to the IC Network Ellen! If you look up at the top of the page there is a link for the ICN Shop. I know that there is at least one cookbook for sale if not more. My mother actually bought me one for Christmas. Hope this helps.
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