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Surgery again

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  • Surgery again

    HI everyone;
    Hope your all well and in good spirits. I once again am haveing another flare up. I am not surprised, only surprised it took this long to flare up since been under so much stress these last few weeks. Over the weekend I started haveing pains when going potty. I had this horrible cramping feeling right after i finished peeing. I even yelled it was hurting, every since, its been rolling down hill once again. Today i wasnted to get things done, I am still looking for a job. BUt now, i cant even walk around with out getting horrible cramps,and having to stop while walking. I walk so slow like an old lady,lol. Just driving set it off today.well, so then i call my doc office, and well I get to have surgery yippy!!! not really...
    BUt i have not had the cysticope done with the hyderoextention. or how ever it is spelled. but have to wait till april 2nd. Which is of course when your looking for a job and need one asap, this is not a good thing. I cant seem to keep up with things right now its just all crazy!!I was reading some of the new peoples posts, I feel so bad for them all, been threw such a terrible horrible experiance. I dont even have much of my bladder affected just 5-10% of mybladder. I have so much pain with so little effected, wow i cant even imagin it.
    BUt we each know our own suffering, we all know its a horrible experaince. I am to the end of my own ropes with all thats going on. Finding a job, loose of a friend, now to deal with this too. I was hopeing to find a job and be working. But no job as of yet. Plus i find out i dont qualify for the unemplyment like i thought i was going to. Because i didnt earn enough income last year. thanks to the FIA regulations. The system is so backwords.
    I am limmited to make only 500$gross income a month, loose my job, have no savings cos i make 500$ a month,yet FIA has no help except what i already have since i lost my job. And now no unemployment since i dont make enough to qualify for it. Now does it make since to anyone? cos it doesnt to me.
    I did file for disability, but the chances for it is very slim. Since i just have me and nobody to help, well it doesnt help any also.
    My stomach is just killing me, I have to wait for the doctor to call back but i am also going to get an endoscope done. But till then, i am enjoying a lovely diet of cereal. Other things seem to set it off.
    So anyways thats where i am not now. Hopefuly this doctor will find something new or differant and will lead to better treatment.
    take care everyone

    Current Conditions:
    IC,Feb 06

    Prenecious Anemia
    Stomach Ulcers
    Acid Reflux
    Low Blood Sugar

    Gaul Bladder-1996


    Elmiron,100mg 2am 2pm
    Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
    Elavil, 150 1pm
    Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
    Prilosec,20mg 1am 1pm
    Zoloft,100mg 1 pm
    Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
    Reglan, 10mg, 1 3xday with meals-for duonditis
    Ultram 50mg 1 every 4hrs as needed for pain
    Pyridim,100mg as needed
    Vicodin 5/500 as needed for pain
    Heating pad
    Ice Pack
    Arthritis Pain Equate brand 650mg usualy 2 at a time
    Stool softeners w/stimuli, 2am 2pm[/COLOR]

    Hopefuly no more gets added to the list!!!

    I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
    Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
    My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
    When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
    Dont forget to take care of you!
    Take care

  • #2
    Oh gosh Stacy you do have a lot on your plate right now!!! I'm with you in hoping the doc has some better treatment ideas for you! I'm just so sorry you have to deal with all of this! Yuck!

    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!

    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:

    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS


    • #3
      Prayers For You!

      Oh I so know your pain and stress. PRAYERS for you to become validated and pain free!
      All my hobbies & plans for my life have come to a screeching halt in this past year and the next looks pretty bleak! But I know GOD has a plan for me or I wouldn't be here. Just like all of you! That's what keeps me waking up each day even though I don't want to face another day of screeming pain. I will Garden again. I will Knit & Crochet and do all the Creative things that are stuck in my head again. I want to go camping & fishing. GOD BLESS US ALL INDEED! This is my cat Mikey, only Mikey is black with faint reddish brown stripes. You can only see his stripes when the light shines on him a certain way. He is blessed too!

      Diagnosed with IC 1996
      Prolapsed bladder & bowel (2nd time)
      Fibromyalgia 1991
      Meds: ELMIRON
      DILAUDID (Only if I have to cuz they make me shake)
      PYRIDIUM (Freezes bladder lining)
      OXAZEPAM (Night)


      • #4
        I think the procedure you mean is hydrodistention --- you can read about it in the Patient Handbook.

        I'm so sorry you're having such a difficult time. I hope your tomorrow is a better day.

        Warm hugs,
        Stay safe

        Elmiron Eye Disease Information Center -
        Elmiron Eye Disease Fact Sheet (Downloadable) -

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help:


        Diet list:

        AUA Guidelines:

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool