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  • #1

    Hey Everyone! Surgery Tomorrow!

    Yes, surgery to lift my bladder and bowel tomorrow morning! I hope this works! At least I got docs to listen and do something about this problem. The Elmiron seems to be taking the edge off the IC finally. That took a long time to work, 6 - 8 months.
    Wish me luck in the OR and my prayers are with you all to be pain free.
    All my hobbies & plans for my life have come to a screeching halt in this past year and the next looks pretty bleak! But I know GOD has a plan for me or I wouldn't be here. Just like all of you! That's what keeps me waking up each day even though I don't want to face another day of screeming pain. I will Garden again. I will Knit & Crochet and do all the Creative things that are stuck in my head again. I want to go camping & fishing. GOD BLESS US ALL INDEED! This is my cat Mikey, only Mikey is black with faint reddish brown stripes. You can only see his stripes when the light shines on him a certain way. He is blessed too!

    Diagnosed with IC 1996
    Prolapsed bladder & bowel (2nd time)
    Fibromyalgia 1991
    Meds: ELMIRON
    DILAUDID (Only if I have to cuz they make me shake)
    PYRIDIUM (Freezes bladder lining)
    OXAZEPAM (Night)
    ATIVAN
    "STILL SMILIN CUZ WHEN I GET ABOVE THE SUN, I'LL BE ALL BETTER"
    Tags: None
  • #2
    Good luck, hope you feel well real soon!
    Erin

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    • #3
      I'm thinking of you today. Be sure to let us know how you are doing.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        I hope this works for you. Looking forward to hearing a good report.
        Sharon

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.



        Link to the ICN Patient Handbook:
        http://www.ic-network.com/handbook/

        Link to the IC Diet:
        http://www.ic-network.com/diet/


        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          My mother-in-law just had bladder and uterine surgery to lift her bladder. She had a painful bladder for almost a year and felt 50% better and now is 100% 10 weeks later. She now eats what she wants, except for coffee and soda, and feels bladder issue free. I pray for the same outcome for you. My prayers and blessings are with you!

          Comment

          • #6
            Good luck and best wishes for a speedy recovery. I hope you willsoon start feeling a lot better. Please keep us in foured whenyour feeling well how it is working for you.
            Take good care of you.
            stacy


            Current Conditions:
            Endometriosis,1995
            IC,Feb 06
            IBS-C
            Prenecious Anemia
            Stomach Ulcers
            Duodenitis
            Acid Reflux
            Low Blood Sugar
            Hypothyroid
            Migrains

            Surgeries
            Laporoscopy-1995
            Gaul Bladder-1996
            Laporoscopy-2005
            colonoscopy2005
            cysto/hydro-2006
            cysto/hydro-2007
            endoscope-2007

            Meds:
            Elmiron,100mg 2am 2pm
            Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
            Elavil, 150 1pm
            Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
            Prilosec,20mg 1am 1pm
            Zoloft,100mg 1 pm
            Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
            Reglan, 10mg, 1 3xday with meals-for duonditis
            Ultram 50mg 1 every 4hrs as needed for pain
            Pyridim,100mg as needed
            Vicodin 5/500 as needed for pain
            Heating pad
            Ice Pack
            Arthritis Pain Equate brand 650mg usualy 2 at a time
            Stool softeners w/stimuli, 2am 2pm[/COLOR]

            Hopefuly no more gets added to the list!!!

            I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
            Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
            My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
            When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
            Dont forget to take care of you!
            Take care

            Comment

            • #7
              I hope it all went well!! Let us know as soon as you are able to how things went
              ****
              Jen

              *Diagnosed with severe IC in 2004
              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Comment

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