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  • White tissue in urine last night? what is it???

    Hi everyone;
    Just a quick question, yesterday night, when going pee, i was haveing a hard time going, and i had to really strain even though though i had a lot of presure to go.
    Finnaly, i was able to go. But when i finished i noticed a large piece of white tissue, I think it was blocking it so i couldnt go potty.
    Do any of you have that experaince? I have seen it before also. but it was not that big before. I think it must be the tissue of the bladder lining?? Is it something to worry about passing?? The last time i had a bladder infection, and doing a urine test, i saw a small strand of the white tissue. But this was the size of a nickel or around that size.
    I am not sure to contact my doctor on this issue also? Any surgestions??
    thanks stacy


    Current Conditions:
    Endometriosis,1995
    IC,Feb 06
    IBS-C

    Prenecious Anemia
    Stomach Ulcers
    Duodenitis
    Acid Reflux
    Low Blood Sugar
    Hypothyroid
    Migrains

    Surgeries
    Laporoscopy-1995
    Gaul Bladder-1996
    Laporoscopy-2005
    colonoscopy2005
    cysto/hydro-2006
    cysto/hydro-2007

    endoscope-2007

    Meds:
    Elmiron,100mg 2am 2pm
    Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
    Elavil, 150 1pm
    Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
    Prilosec,20mg 1am 1pm
    Zoloft,100mg 1 pm
    Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
    Reglan, 10mg, 1 3xday with meals-for duonditis
    Ultram 50mg 1 every 4hrs as needed for pain
    Pyridim,100mg as needed
    Vicodin 5/500 as needed for pain
    Heating pad
    Ice Pack
    Arthritis Pain Equate brand 650mg usualy 2 at a time
    Stool softeners w/stimuli, 2am 2pm[/COLOR]

    Hopefuly no more gets added to the list!!!

    I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
    Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
    My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
    When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
    Dont forget to take care of you!
    Take care

  • #2
    I have never had that happen to me, but that doesn't mean much. I would call your doctor though. Thats just something I would ask him over the phone.

    Comment


    • #3
      I have heard of many IC patients say that they have white tissue in thier urine..I would talk to a dr about this though..
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        My uro told me that I had a lot of debris in my urine when I gave him a sample but it's not big enough that I can actually see it.
        Christine



        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus

        Comment


        • #5
          I had the same flimy tissue in my urine and have been told it is the gag layer of my bladder sluffing off. I had wondered what it was when it was happening but didn't know what it was until I was diagnosed with IC. I wonder if this was made more public that maybe some people would get treatment before the gag layer was completely gone. Maybe if they caught it at the start they might be able to reverse the damage.


          Symptoms since '86 starting with frequency(told I had a small bladder)
          Diagnosed with medium IC in 2004 when pain started

          Medications:
          For IC Elavil 50 mg - Atarax 50 mg - Fentanyl 25 Patch replaced every 72 hrs

          For HBP Norvasc 5mg -Diovan 320 mg

          For Depression Wellbutrin XL 300mg

          Sinus Problems Flonase 2x daily-Alegera D when needed

          And Now Fibromyalgia


          Have Tried Elmiron (made me sick and hair loss)
          DMSO and Heparin instills no help
          All and every urgency pill
          Trileptal, Neurontin, Tramdol did nothing
          Cymbalta which made me dizzy and flushed
          Lyrica gave me night terrors each night a different family member died very vivid now I know how they got the name night terrors

          Comment


          • #6
            I have this too on and off. My NP said it is the layer of my bladder because of the IC and because i was in a flair.


            Just as my IC hit me I had a white glob like you describe and also that pressure feeling, never did get an answer to what it was.


            I would call your dr and ask.


            Lyme disease diagnosed 11/05
            vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
            IC diagnosed with hydro/cysto- may 17, 2006

            Over growth of lactobicilli found 8/07 treating with doxy.

            Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

            8/22/07- was able to get my first speculum exam, with pap

            Strep D found in bladder with United medical labs May 2006
            2 strains of strep in stool culture 9/06
            high Strep ASO titre found 10/06

            NEW MED

            Capsasin cream-once a day for 20min,
            BUt wont lie it does burn

            About to start valium supositories for PFD

            Trigger point injections- oct 07

            Current meds:
            Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
            Zanaflex 2mg
            IC and low oxalate diet, no sugar diet
            Xanax for appointments to help relax me since they cause so much pain

            Started PT 3/07, PT has really helped me in ways I never knew that it would

            Meds ive tried
            Lyrica
            Klonopin
            Singulair
            Claritin
            Pyridium
            Soma- can barely tolerate half a pill
            Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
            Estradiol cream
            Urelle- caused worse bladder spasm and retention

            Various antibiotics for lyme which caused yeast and made the IC and VV worse

            waiting for the next chronic illness to pop up


            "Did you know?
            Every 15 seconds,
            a person is
            diagnosed with
            interstitial cystitis."
            Source: J. Dimitrakov, MD

            Comment


            • #7
              A big thanks to you all!. I am deffinatly going to give them a call on monday. I have been in pain for a flair since last sat night. Just this last day feeling better. But i am having surgery on april 2nd, so i think is good to tell her now.
              Hope you all are doing well.
              take good care of you!!!
              stacy


              Current Conditions:
              Endometriosis,1995
              IC,Feb 06
              IBS-C

              Prenecious Anemia
              Stomach Ulcers
              Duodenitis
              Acid Reflux
              Low Blood Sugar
              Hypothyroid
              Migrains

              Surgeries
              Laporoscopy-1995
              Gaul Bladder-1996
              Laporoscopy-2005
              colonoscopy2005
              cysto/hydro-2006
              cysto/hydro-2007

              endoscope-2007

              Meds:
              Elmiron,100mg 2am 2pm
              Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
              Elavil, 150 1pm
              Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
              Prilosec,20mg 1am 1pm
              Zoloft,100mg 1 pm
              Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
              Reglan, 10mg, 1 3xday with meals-for duonditis
              Ultram 50mg 1 every 4hrs as needed for pain
              Pyridim,100mg as needed
              Vicodin 5/500 as needed for pain
              Heating pad
              Ice Pack
              Arthritis Pain Equate brand 650mg usualy 2 at a time
              Stool softeners w/stimuli, 2am 2pm[/COLOR]

              Hopefuly no more gets added to the list!!!

              I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
              Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
              My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
              When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
              Dont forget to take care of you!
              Take care

              Comment


              • #8
                I have that periodically as well, and finally learned after I was diagnosed, that it is the lining of my bladder.

                It was very severe after my cystohydro, and I can only guess that it really tore off the layers of my bladder to have it stretched so much.
                http://www.TheCraftyEwe.etsy.com

                Comment


                • #9
                  Ohh thanks for that info. I was thinking thats what it is. But wasnt 100% sure,lol I Mean it cant be to many things,lol since it happends when you pee.lol.
                  I havent had my cystohydro yet, not till april 2nd, Which leaves me to wonder why on earth it happends when i havent had the procedure done. Im sureit cant be good news thats for sure. Plus i have been taking an antibiotic for 3 months now. Have to take it for 6 months, becausse i was getting infections every other week. thats when i noticed the 1st time the white tissue. But after 3 months on it, i havent had one sice, and till this past week been feeling better as far as my bladder is concered.
                  I did have a few months though of my Endo flarring up. But that seems to be better. Its kind of scarry to think my bladder lining is falling apart like that in big chunks though.. I am wondering now when I had the Freeze up and wasnt able to pee for a full day if that was a reason why. Or maybe when they used the large catheder in the ER cos it hurt realy bad, if that is what started it.
                  All this is still new to me even though I been diagnosed now for little over a year. I cant keep up with all this. Its always somthing. I just which it jsut stop and go away for once.
                  Trying to find a job this month and not haveing any luck at all. But then ther eis only 2 weeks left and htne i have to have surgery. How to sstart a new job and say ohh yeah by the way i have this bladder condition, and i miss work all the time,a nd ohh yeah haveing this surgery and im sure its going to throw me into a flare up a few days latter, so ill be missing a week or 2. Yeah like anyone is going to hire me.
                  I litterly at the moment have 38$ to my name,but now i have to get refills, so I will be down to 35$. But then this coming week, i have to drive to the doctors, which is about 40 mins one way, pay co-pay for the doc and then gas is gone in the car AAAHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!
                  I dont know what to do any more. I filed for disability, but will be months before hearing about that. My family cant help me they cant pay their own bills. No idea what to do any more...I tried for unemployment when i lost my job. I am 550$shor of income to recieve benifits. The state makes you be low income, then when you loose your job, you cant get help,go figure. Isnt life so fun!
                  Anyways every take good care fo your selves.
                  stacy


                  Current Conditions:
                  Endometriosis,1995
                  IC,Feb 06
                  IBS-C

                  Prenecious Anemia
                  Stomach Ulcers
                  Duodenitis
                  Acid Reflux
                  Low Blood Sugar
                  Hypothyroid
                  Migrains

                  Surgeries
                  Laporoscopy-1995
                  Gaul Bladder-1996
                  Laporoscopy-2005
                  colonoscopy2005
                  cysto/hydro-2006
                  cysto/hydro-2007

                  endoscope-2007

                  Meds:
                  Elmiron,100mg 2am 2pm
                  Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
                  Elavil, 150 1pm
                  Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
                  Prilosec,20mg 1am 1pm
                  Zoloft,100mg 1 pm
                  Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
                  Reglan, 10mg, 1 3xday with meals-for duonditis
                  Ultram 50mg 1 every 4hrs as needed for pain
                  Pyridim,100mg as needed
                  Vicodin 5/500 as needed for pain
                  Heating pad
                  Ice Pack
                  Arthritis Pain Equate brand 650mg usualy 2 at a time
                  Stool softeners w/stimuli, 2am 2pm[/COLOR]

                  Hopefuly no more gets added to the list!!!

                  I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
                  Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
                  My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
                  When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
                  Dont forget to take care of you!
                  Take care

                  Comment


                  • #10
                    Hi Stacy.
                    Sorry you are having a rough time. I also am having a terrible time. I think I may have another UTI also(just got over one a couple weeks ago). I also just got my period and have a terrible flu virus on top of all that and my bladder had been in a flare for days. It seems it never ends.

                    I also get those white things in my urine all the time. I never mentioned it to my doctor. I will when I see her next though. I think it is just the top layer of skin that sloughs off due to all the inflammation. It is getting rid if that skin and constantly trying to heal itself.

                    I hope things pick up for you soon Hon.
                    Jen

                    Comment


                    • #11
                      Stacy -- Have you looked into whether you are eligible for food stamps? That would at least give you a little breathing room. That is such a horrible position to be in -- to poor to live, but too well off for public assistance. This country is really crazy with the way we treat our own citizens.

                      I don't think you need to worry too much about the white debris. My doctor said it is not the gag layer itself coming off. I'm sorry I don't remember what he said it was, because it only happened to me one time and I never asked again.

                      Anyway, good luck to you. I hope you can find some kind of assistance. Have you tried private organizations that help the poor? I know it's so hard to deal with all these issues when you're in pain, but you have to get something to live on! Wishing you very good luck with all your problems!
                      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                      Wishing you happiness and good health, and all the best out of life.

                      Peace, Carolyn
                      ___________________________________________________

                      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                      On the Beach with IC

                      Comment


                      • #12
                        Thanks, Yeah i do get the food assistance already, and the medical assistatance. But thats all i am qualified to get. Thanks for your kind words.
                        stacy


                        Current Conditions:
                        Endometriosis,1995
                        IC,Feb 06
                        IBS-C

                        Prenecious Anemia
                        Stomach Ulcers
                        Duodenitis
                        Acid Reflux
                        Low Blood Sugar
                        Hypothyroid
                        Migrains

                        Surgeries
                        Laporoscopy-1995
                        Gaul Bladder-1996
                        Laporoscopy-2005
                        colonoscopy2005
                        cysto/hydro-2006
                        cysto/hydro-2007

                        endoscope-2007

                        Meds:
                        Elmiron,100mg 2am 2pm
                        Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
                        Elavil, 150 1pm
                        Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
                        Prilosec,20mg 1am 1pm
                        Zoloft,100mg 1 pm
                        Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
                        Reglan, 10mg, 1 3xday with meals-for duonditis
                        Ultram 50mg 1 every 4hrs as needed for pain
                        Pyridim,100mg as needed
                        Vicodin 5/500 as needed for pain
                        Heating pad
                        Ice Pack
                        Arthritis Pain Equate brand 650mg usualy 2 at a time
                        Stool softeners w/stimuli, 2am 2pm[/COLOR]

                        Hopefuly no more gets added to the list!!!

                        I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
                        Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
                        My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
                        When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
                        Dont forget to take care of you!
                        Take care

                        Comment

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