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  • #1

    Hello All, I'm Home!

    Surgery went well, but it turned out that it was my bowel and not my bladder that was buldging out my vagina. I can't believe all those docs couldn't see that in 6 years of calling me nuts!
    I am on the mend and feeling waaaay better now there's nothing pushing on my poor IC bladder. It's all uphill from here!:woohoo: :woohoo: :woohoo:
    Oh PRAYERS for you ALL out there for painfree days ahead!
    All my hobbies & plans for my life have come to a screeching halt in this past year and the next looks pretty bleak! But I know GOD has a plan for me or I wouldn't be here. Just like all of you! That's what keeps me waking up each day even though I don't want to face another day of screeming pain. I will Garden again. I will Knit & Crochet and do all the Creative things that are stuck in my head again. I want to go camping & fishing. GOD BLESS US ALL INDEED! This is my cat Mikey, only Mikey is black with faint reddish brown stripes. You can only see his stripes when the light shines on him a certain way. He is blessed too!

    Diagnosed with IC 1996
    Prolapsed bladder & bowel (2nd time)
    Fibromyalgia 1991
    Meds: ELMIRON
    DILAUDID (Only if I have to cuz they make me shake)
    PYRIDIUM (Freezes bladder lining)
    OXAZEPAM (Night)
    ATIVAN
    "STILL SMILIN CUZ WHEN I GET ABOVE THE SUN, I'LL BE ALL BETTER"
    Tags: None
  • #2
    That's good to hear.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      I'm glad you are home. Speedy recovery to you.
      Sharon

      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

      Where I can be found most days.



      Link to the ICN Patient Handbook:
      http://www.ic-network.com/handbook/

      Link to the IC Diet:
      http://www.ic-network.com/diet/


      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment

      • #4
        Great So glad to hear you on your way to being better!take good rest and good care of your self.


        Current Conditions:
        Endometriosis,1995
        IC,Feb 06
        IBS-C
        Prenecious Anemia
        Stomach Ulcers
        Duodenitis
        Acid Reflux
        Low Blood Sugar
        Hypothyroid
        Migrains

        Surgeries
        Laporoscopy-1995
        Gaul Bladder-1996
        Laporoscopy-2005
        colonoscopy2005
        cysto/hydro-2006
        cysto/hydro-2007
        endoscope-2007

        Meds:
        Elmiron,100mg 2am 2pm
        Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
        Elavil, 150 1pm
        Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
        Prilosec,20mg 1am 1pm
        Zoloft,100mg 1 pm
        Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
        Reglan, 10mg, 1 3xday with meals-for duonditis
        Ultram 50mg 1 every 4hrs as needed for pain
        Pyridim,100mg as needed
        Vicodin 5/500 as needed for pain
        Heating pad
        Ice Pack
        Arthritis Pain Equate brand 650mg usualy 2 at a time
        Stool softeners w/stimuli, 2am 2pm[/COLOR]

        Hopefuly no more gets added to the list!!!

        I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
        Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
        My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
        When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
        Dont forget to take care of you!
        Take care

        Comment

        • #5
          Glad you are on the mend!

          Hugs, Sandy

          *IC-- Summer 2004; PFD--October 2005
          *Fibro--Fall 2000; CFS-- Fall 2000
          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

          Total Abdominal Hysterectomy--adenomyosis--9\08

          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

          Comment

          • #6
            :woohoo: :woohoo: :woohoo: :woohoo:

            Erika
            IC diagnosed officially via cysto/urodynamics 1/26/07

            Grade II Endometriosis diagnosed via lap 12/11/07

            "Fall down seven times, Stand up eight."

            "Life is a tragedy for those who feel and a comedy for those who think."

            Current Treatments:
            Interstim Since 5/25/07!
            Birth Control

            Comment

            • #7
              So glad they found out what was wrong and glad you are on the road to recovery :woohoo: :woohoo: :woohoo:
              Miss Bessie

              Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

              Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

              Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

              Comment

              • #8
                Oh, so glad to hear you are getting better! Please write and we'll chat okay?

                Take care!
                Moonheart
                http://www.TheCraftyEwe.etsy.com

                Comment

                • #9
                  Hi; Curlyfries;

                  I am so happy to hear that surgery went well for you, I hope you a fast and speedy recovery and that you will on the mends real soon too.

                  Warm hugs, Debbie
                  Thinking positive has got me through to another day!!

                  Comment

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