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In So Much Pain

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  • ICNDonna
    replied
    You'll find diet information in the Patient Handbook at http://www.ic-network.com/handbook

    Hopefully, once you get on an IC diet, you'll begin to feel better. It does not sound like you are drinking too much water. We need six to eight cups a day.

    Donna

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  • DaniBelle
    replied
    Welcome..sorry you're feeling so bad...

    If your doctor won't give you any stronger pain medication, ask him/her to refer you to a pain management center. If I had not been going for the last 6 months, I would not be able to get out of bed. Also, ask your doctor if he/she could give you an instillation containing these 4 medications: Lidocaine, Heparin, Sodium Bicarbonate, and Distilled Water. I can give you the exact amount of each if you want to check into this. I tried the DMSO instillations for a few weeks and they were too painful. I couldn't hold the medication in my bladder for more than 15 minutes and had tears in my eyes until I peed it out. My Uro sent me to a Gyn who had great success with her I.C. patients by giving them the above listed mixture. This type of instill is great. Each time I get one, it feels like cool water has been poured on a fire and put it out! Even after I void, it has coated my bladder and I feel so much better. I started doing the home instillations a few months ago as well. Please ask your doc about this. I think you will find great relief from this type of instill. Are you taking Elmiron as well? Oh, make sure to check (if you haven't already) the I.C. diet. It is listed somewhere on the main page of this site. I hope you feel better soon. I am an Alabama girl too.....from Tuscaloosa.

    Originally posted by Ladybug51 View Post
    I Just Wanted to Thank You For You Input, That Was So Nice Of You . I'm Just Having Such A hard Time trying To Find My Way Though This , I Just Have never Had Anything Like This That Just Don't Get better. And it Scares Me To Death. I'm Going to Day For A DMSO, And I'm Asking For A Stronger Pain Pill As He Just has Me On Darvocet 100 MGS And I Don't See it Doing Any Good At All. I Have been trying To Drink Nothing But Water All day Long . I Get Down 64OZS Aday. But I Still Have So Much burning. I'm Open Too Anything For Help From Any One Here On The Site. Thank You So Much , Penny

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  • Ladybug51
    replied
    The Burn

    Originally posted by GriffsMommy View Post
    I just wanted to say to the IC Network! I don't really know anything about MSM but I do know that there are people that have used it and I'm sure they will chime in with their input. Sorry you're in so much pain
    I Just Wanted to Thank You For You Input, That Was So Nice Of You . I'm Just Having Such A hard Time trying To Find My Way Though This , I Just Have never Had Anything Like This That Just Don't Get better. And it Scares Me To Death. I'm Going to Day For A DMSO, And I'm Asking For A Stronger Pain Pill As He Just has Me On Darvocet 100 MGS And I Don't See it Doing Any Good At All. I Have been trying To Drink Nothing But Water All day Long . I Get Down 64OZS Aday. But I Still Have So Much burning. I'm Open Too Anything For Help From Any One Here On The Site. Thank You So Much , Penny

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  • Ladybug51
    replied
    The Burn,

    Originally posted by Roxie2007 View Post
    I use the MSM gel and it works great for me! Roxie
    Hi And Thank you , For Your Input, Bless You As i Have Been Thinking I'm All Alone with This Mess. i Guess I'm Just scared, As I Have Never Had Anything I Could Not Just Walk Away From before. Yes I'm Using The Glucosamine Chondroitin MSM , But I'm Almost Scard To Stay On It As i Think Thats When I Started to Flair With It . I Got The One That Is For RX Joint, As Thats The Only One My health Foor Store Had. Is This one Ok To Take ? I'm Going to The Doctor Today For A DMSO And I'm Asking For A Stronger Pain Pill As he Just Has me On Darvocet 100 Mgs. And it Dose Not Do Anything For Me For the Pain. I Went to bed Last night And Just Cryed. As i Hurt So bad. At This Point And Time I Don't No What To Eat Or Drink, Can You Drink Too Muc h Water ? As i Drink it All Day About 64 OZS Aday. Is That Too Much ?I Stay Away From Everything High in C Supplements. Thank You So Much Again God Bless You , Penny

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  • **Angie**
    replied
    I'm like you~willing to try anything. I've been taking the MSM G. for about 3 wks and haven't noticed a difference. I also have the burning down my thighs. Mostly my left thigh. to all the fun!!!

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  • Roxie2007
    replied
    I use the MSM gel and it works great for me! Roxie

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  • djo
    replied
    And one more thing... be careful about Chondroitin. It doesn't seem to bother me, but can cause some people to flair. Since you are already in pain, it may be best to get the glucosamine/msm without it. You will probably need to go to a health food store. Look at the ingredients to make sure it doesn't have a bunch of other stuff in it.

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  • djo
    replied
    I've been using glucosamine/msm & quercetin for the last month or so. It has helped a lot with the pain, although I don't think I was as bad as you sound. It took about 2 or 3 weeks to really see a difference, so hang in there! Make sure you are good about taking it, don't skip. Hopefully you will see some relief. And make sure you are watching what you are eating & drinking!

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  • GriffsMommy
    replied
    I just wanted to say to the IC Network! I don't really know anything about MSM but I do know that there are people that have used it and I'm sure they will chime in with their input. Sorry you're in so much pain

    Leave a comment:


  • Ladybug51
    started a topic In So Much Pain

    In So Much Pain

    HI All,
    I HAve Had IC, Now For About The Past Five Months ,And Man It's Not Been A Blast Thats For Sure . I As have Fibromyagia, I Just Went Into The hospital The 28th Of Feb, And the Doctor Said He Took Out More Polyps This Time Then The First, And it's Only Been Four Months Since i Had it Done The First Time . I Have been Doing What my Doctore Told Me To Do But It Still Don't Help. I Have Been On Elmiron, and Pyridium Plus, And I Have Had the DMOS Done For Five Weeks Also. At This Point I'll try Anything !!!!I Seen On The Website That Glucosamine /Chondroitin MSM. And Quercentin . So I Even Went And Got that , Can Anyone Tell me if they Have Tryed This And if it Works ? Please .!!!! I Hurt With Burning Down My Legs , It's Just unreal, So If Anyone Can Give me Any Info That Would Be great. Thank You So Much ,
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