(I am not sure where this would go...this section seems the best fit)
...When I was first diagnosed with IC my symptoms were:
Sever burning
Frequency
Urgency associated with burning
Pelvic pain
Most trigger foods (chocolate, carbonated, caffine ect) bothered me. I couldn't ride in a car (it would agravate my symptoms). After a while I couldn't wear pants b/c the pressure on my abdoman was SO painful. The same followed with underwear (too much pressure on that general are--couldn't stand it).
I was put on Elmiron, Elivil, and Ditropan XL.
Took those religiously for about a year and my symptoms improoved greatly. Then I stopped the Elavil b/c of bad weight gain. My symptoms worsened for about 2 months then got better again. I then stopped the Dirtopan XL and Elmiron (cold turkey) becuase...well for no particular reason. Just did. That was in October. My IC is significantly better. I can eat whatever I want (spicy, carbonated, chocolate) but in sllight moderation. I can drink pretty much anything (except caffine--that always made me have to go). I am able to wear skirts, loost shorts, and some long PJ bottoms. Still no undies though
I still have mini flares after I ride in the car sometimes (burns for like 2 bathroom trips). But have not had a flare last more than 4 days in....months. My main symptom is slight frequency (3-7 bathroom trips daily) and occasinal burning.
Has anyone experienced this? Where they stop ALL bladder meds and get better. I am just at a loss because, from what I have read, when most ICers go off their meds they flare really bad.
Thoughts on this are more than welcome.
PS. I take a very high dose of Zegerid (Omeprazole/Sodium Bicarbonate) 40mg 2x daily for GERD/Bile reflux. I was told by my gastro. that was pretty much the highest dose. Could this be helping my bladder some how (since TUMS and Prelief can help with IC pain)?
...When I was first diagnosed with IC my symptoms were:
Sever burning
Frequency
Urgency associated with burning
Pelvic pain
Most trigger foods (chocolate, carbonated, caffine ect) bothered me. I couldn't ride in a car (it would agravate my symptoms). After a while I couldn't wear pants b/c the pressure on my abdoman was SO painful. The same followed with underwear (too much pressure on that general are--couldn't stand it).
I was put on Elmiron, Elivil, and Ditropan XL.
Took those religiously for about a year and my symptoms improoved greatly. Then I stopped the Elavil b/c of bad weight gain. My symptoms worsened for about 2 months then got better again. I then stopped the Dirtopan XL and Elmiron (cold turkey) becuase...well for no particular reason. Just did. That was in October. My IC is significantly better. I can eat whatever I want (spicy, carbonated, chocolate) but in sllight moderation. I can drink pretty much anything (except caffine--that always made me have to go). I am able to wear skirts, loost shorts, and some long PJ bottoms. Still no undies though

I still have mini flares after I ride in the car sometimes (burns for like 2 bathroom trips). But have not had a flare last more than 4 days in....months. My main symptom is slight frequency (3-7 bathroom trips daily) and occasinal burning.
Has anyone experienced this? Where they stop ALL bladder meds and get better. I am just at a loss because, from what I have read, when most ICers go off their meds they flare really bad.
Thoughts on this are more than welcome.
PS. I take a very high dose of Zegerid (Omeprazole/Sodium Bicarbonate) 40mg 2x daily for GERD/Bile reflux. I was told by my gastro. that was pretty much the highest dose. Could this be helping my bladder some how (since TUMS and Prelief can help with IC pain)?
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