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Jan S.

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  • #1

    Jan S.

    Hello,
    I was diagnosed with IC in November, the day before Thanksgiving. I have found that by using the book "A Taste of The Good Life" for my eating that my flares are fewer and that is a blessing. I do have a questions for others out there, though. What do you take for things like headaches or mild aches and pain? I found that simple aspirin or ibuprophin cause me flares. I am wondering if there is some OTC or do I need a script for this? Also, I recently moved to Grand Rapids, MI and there is no support group here and I haven't found a doctor yet. Any others from this area who can steer me in the right direction?
    Jan
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  • #2
    I usually take a couple of tylenol if I have a headache.

    Donna
    Stay safe


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    • #3
      HI Welcome! Tylenol is my 'drug of choice' too. That's the only thing I can take that doesn't cause flares. Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

      Comment

      • #4
        what is this?

        What is this MSM gel for uretha burning? I'm new to all this. I've been taking the Elmiron since mid November and sticking to a strict diet but the ureatha burning is still bugging me.
        Jan

        Comment

        • #5

          Hi Jan; My name is stacy I also live in Michigan. But in mt. Pleasant. Here too there is no suport groups. I wish there was though it be nice to have a place go to to.
          I have found just over a year now that i have IC. Its a very frustrating condition to deal with.
          Also you might want to try useing Prelief. You can get it at walgreens or Ritaid. That helps reduce the acid in the urine.
          You can also get Pryidium. Thats also works great with the bladder pain and urithria pain. I never had any flares from takeing medications from tylonal or mortin.
          But I like to use a product that is from india acculy(in not indian). But was my ex-boyfriends. Its like a balm for headachs also. Here you can get something simular called Tiger Balm. I belive now they even have patches for pain. Its simular to the Icy Hot balm. But made for headachs. You rub it onto the spots where it hurts your head or your neck or sinuses. The trick is to rub it well in to the area. It works really great. You can get it at wal-mart, or walgreens, any place like this has it. I acculy think they keep it near ICY HOT. But if you dont want to take any pills, this works well, at least for me. maybe worth a try.
          Good luck hope it works for you. Hope your feeling better.
          take care
          stacy


          Current Conditions:
          Endometriosis,1995
          IC,Feb 06
          IBS-C
          Prenecious Anemia
          Stomach Ulcers
          Duodenitis
          Acid Reflux
          Low Blood Sugar
          Hypothyroid
          Migrains

          Surgeries
          Laporoscopy-1995
          Gaul Bladder-1996
          Laporoscopy-2005
          colonoscopy2005
          cysto/hydro-2006
          cysto/hydro-2007
          endoscope-2007

          Meds:
          Elmiron,100mg 2am 2pm
          Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
          Elavil, 150 1pm
          Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
          Prilosec,20mg 1am 1pm
          Zoloft,100mg 1 pm
          Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
          Reglan, 10mg, 1 3xday with meals-for duonditis
          Ultram 50mg 1 every 4hrs as needed for pain
          Pyridim,100mg as needed
          Vicodin 5/500 as needed for pain
          Heating pad
          Ice Pack
          Arthritis Pain Equate brand 650mg usualy 2 at a time
          Stool softeners w/stimuli, 2am 2pm[/COLOR]

          Hopefuly no more gets added to the list!!!

          I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
          Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
          My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
          When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
          Dont forget to take care of you!
          Take care

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