Tweet
I saw Dr. Phillip Hanno at the University of Penn Medical Center in Philadelphia. I live 50 miles from Philadelphia, and I saw him as a second opinion. I don't know how much I can say about him, due to posting guidelines. I believe you can't say anything negative, but it would be all positive anyway. Basically, he makes his diagnoses on SYMPTOMS ALONE. I did bring my cysto/hydro/biopsy results to him as well, but he says that those are not always reliable, and he makes HIS diagnoses on symptoms. He first starts you out on Elavil. He doesn't actually use Elmiron, due to it's low percentage of success. But I AM actually on Elmiron from my first urolgist, and the one I will probably have to keep due to the distance that Dr. Hanno is from me. He also wanted me to participate in the Elavil clinical trial that he is conducting right now, but unfortunately, I cannot do that at this time. But he is a great, caring, and brilliant doctor, if you are in the Philadelphia area...
-
-
I'm go glad you had a good visit!Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
Comment