I was diagnosed with IC on February 22, 2007. During this time they also did the stretching of my bladder with the DSMO. They found that i also had a very small bladder. Holds only 200 cc. They were able to stretch to 250, but it did not work. I have tried tons of medications for the last 3 years and they just thought i had OAB. Tried to tell them it was something else. Anyway duri g the stretching of bladder they found all of this. Doctor said it was pretty bad. He started me right away on the Elmiron, 100mg, 3 times a day. Need to take for 4 to 6 months to see if it works. My Urologist has done all he can for me. He referred me on to Kansas City to Dr. Greibling. It took me 4 weeks to get into see him. He is the top urogynocologist in Kansas. I am going to have an Interstim Therapy Implant, but right now am waiting for Insurance to approve. This was to be sent to insurance on the 19th, have been staying in contact with insurance company and the insurance girl from the hospital. Doctor went out of town for conference, only got back last Friday, the insurance company just recieved faxed info yesterday the 27th. The girl at insurance said she would fax a priority to the committee when she faxes the rest of the information. I am to call her Monday to find out anything. I had a bad flare up that started Sunday and i went into work long enough on Monday to do payroll, then went home. The only time i don't hurt is when i take a hot shower. I did that several times on Monday and on Tuesday, went home at noon then. I am back to work today (Wednesday) still in a lot of pain but trying to ignore, i just can't miss work all the time. Nothing seems to help and it is just good to know that their are others going through what i am. No one really knows what you are going thru, you can try and explain it but if you haven't been their you really don't know. They are supportive and my husband helps a lot, with stuff around the house and cooking meals and etc. I just sometimes really don't feel well. So right now i am in the waiting game. I have to pick up prescriptions on Friday for Amitriptolene and Elmiron, which are going to cost me. I don't have prescription on my insurance but do have 125 Plan, I have already almost used up my 2400 i alotted for the year. Well thanks for letting me vent. I enjoy reading the post from everyone. Well i have made this long enough. Till later.

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