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Hi everyone,
My name is Erin, i am 20 years old and live in Australia. I was diagnosed with IC last November after 2 1/2 years of symptoms. It all started when i had a laparoscopy to remove a cyst of my ovary. The shock that my bladder took through the surgery caused my IC, which we now know. i went to my first Dr who was a gynae as i didnt know that it was IC and he performed 2 more laparoscopies to see if it could be endometriosis which my sister has but to no avail. I was then referred to a urogynae and she is great. My first appiontment she performed urodynamics and bladder could only hold 130mls before i was busting to pee, not very good at any age let alone a 20yr old. So then explained all of my symptoms which include frequency, uregency bladder pain but worst of all lower abdo pain, which at times is impossible to deal with. My symptoms at first were not too bad and then got worse about mid 2005 and now cant remember the last pain free day i had. which sucks because i have two jobs and i go to university. My urogynae first put my on a course of tablets called /allegron which are anti deppressant drugs but had no effect on me at all. Then i was put onto anti-epileptic drugs called Lyrica which also did nothing but give me terrible migrains. After this i had a trial of Botox in my bladder and a bladder dilation done under a GA. i was in excruiating pain after this for about 3 weeks and was finding it really hard to pee, it has since settled although still find myself in the toilet for 10 mins trying to pee, really have to push it out, that then adds to the abdo pain. The botox or dilattion has not worked at all. Have recently had my 6 week post op appointment and the next step is to try DMSO instills which im really not looking forward to as catheters absolutely kill me. dont take much for the pain as i can find no one that will prescribe anything so i pretty much have to live with the pain which most days puts me into tears. Before i found this website i felt really alone as i knoew no one that had anything remotely the same. I am really down at the moment cause it just feels like nothing is going to work for me. I am trying to stay as positive as i can but it gets really hard.
So thats my story i just have my fingers crossed for all of us that they find a cure.
Erin xxx
My name is Erin, i am 20 years old and live in Australia. I was diagnosed with IC last November after 2 1/2 years of symptoms. It all started when i had a laparoscopy to remove a cyst of my ovary. The shock that my bladder took through the surgery caused my IC, which we now know. i went to my first Dr who was a gynae as i didnt know that it was IC and he performed 2 more laparoscopies to see if it could be endometriosis which my sister has but to no avail. I was then referred to a urogynae and she is great. My first appiontment she performed urodynamics and bladder could only hold 130mls before i was busting to pee, not very good at any age let alone a 20yr old. So then explained all of my symptoms which include frequency, uregency bladder pain but worst of all lower abdo pain, which at times is impossible to deal with. My symptoms at first were not too bad and then got worse about mid 2005 and now cant remember the last pain free day i had. which sucks because i have two jobs and i go to university. My urogynae first put my on a course of tablets called /allegron which are anti deppressant drugs but had no effect on me at all. Then i was put onto anti-epileptic drugs called Lyrica which also did nothing but give me terrible migrains. After this i had a trial of Botox in my bladder and a bladder dilation done under a GA. i was in excruiating pain after this for about 3 weeks and was finding it really hard to pee, it has since settled although still find myself in the toilet for 10 mins trying to pee, really have to push it out, that then adds to the abdo pain. The botox or dilattion has not worked at all. Have recently had my 6 week post op appointment and the next step is to try DMSO instills which im really not looking forward to as catheters absolutely kill me. dont take much for the pain as i can find no one that will prescribe anything so i pretty much have to live with the pain which most days puts me into tears. Before i found this website i felt really alone as i knoew no one that had anything remotely the same. I am really down at the moment cause it just feels like nothing is going to work for me. I am trying to stay as positive as i can but it gets really hard.
So thats my story i just have my fingers crossed for all of us that they find a cure.
Erin xxx
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