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  • Pelvic Floor Dysfunction? Need any Help I Can get.

    Hey everyone,
    Hope all is doing well. Lattly I have not been doing to well. Not been back to the doctors since surgery yet. Just talk to the nurse on the phone. Still have long way to go before i get in to see her.
    But sheis feeling that I have the PFD. I have been haveing so much muscle pains not to be blunt to much, but in the anel muscle and also in the vaginal area also. I have been trying to find some and any info about it. It all says the same thing. But i need to know what i can do at home. My insurance will not pay for me to go to physical tharapy at all. I even had told my family doctors nurse to see if she can talk with the insurace company and no replay. Every day and not I am feeling this pain the rectel pain and then moves to vaginal pain. Its begining to just be torcher to sit up. Let alone anything to deal with the IC. After i take mortin and flexeril it seems to let up, but if i keep taking flexeril i will just be sleeping my life away. Being that the muscles are feeling so tence and tight, I am not sure to do kegel exercises, seems that just make them more tight.
    Tomarrow i think I will try to get in to see her sooner. I cant keep feeling this same pain day after day its driving me nuts. Since i still do not have a job, not like i can just go pay for it.
    Just wondering if anyone out there has PFD, and what they can do at home, what kinds of meds you take for it, cos most likely i have them here at my home, and this kind of info. I have heard of the tends unit,which is not an option since i dont have a job.
    I just have this horrible presure ache feeling i dont even know how to deal with it, no help from teh doc as of yet. I am even wondering which doctor to see for it. Do i see my urologisst or see an og/gyn for it?
    I am half tempted to see my ob/gyn. I might get in to see her before the urologist. So please if anyone has any info let me know. I am just in so much discomfort and pain i cant stand it.
    Thanks
    stacy


    Current Conditions:
    Endometriosis,1995
    IC,Feb 06
    IBS-C

    Prenecious Anemia
    Stomach Ulcers
    Duodenitis
    Acid Reflux
    Low Blood Sugar
    Hypothyroid
    Migrains

    Surgeries
    Laporoscopy-1995
    Gaul Bladder-1996
    Laporoscopy-2005
    colonoscopy2005
    cysto/hydro-2006
    cysto/hydro-2007

    endoscope-2007

    Meds:
    Elmiron,100mg 2am 2pm
    Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
    Elavil, 150 1pm
    Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
    Prilosec,20mg 1am 1pm
    Zoloft,100mg 1 pm
    Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
    Reglan, 10mg, 1 3xday with meals-for duonditis
    Ultram 50mg 1 every 4hrs as needed for pain
    Pyridim,100mg as needed
    Vicodin 5/500 as needed for pain
    Heating pad
    Ice Pack
    Arthritis Pain Equate brand 650mg usualy 2 at a time
    Stool softeners w/stimuli, 2am 2pm[/COLOR]

    Hopefuly no more gets added to the list!!!

    I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
    Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
    My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
    When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
    Dont forget to take care of you!
    Take care

  • #2
    Try Heat and Ice

    Have you tried using heat and ice during the painful times? You do not want to use the ice for more than 10 minutes or so at a time because it can send you into spasms, but the heat can be used for extended periods of time and can help relax the muscles and the pain.

    My uro does not treat PFD and says to to OBGYN. Until you can get to the Dr., I would certainly try two or three warm baths a day and rotating heat and ice and see if that helps any for you.

    Good luck, I can relate to your discomfort and hope that you feel better soon.

    Comment


    • #3
      I don't think Kegel help Pelvic pain.
      The doctor at the rehab even told me.

      Comment


      • #4
        Thanks for the info everyone, I will then call tomarrow to my Ob/Gyn. Cos the pain is getting every day and hurts all day long. I cant stand it. Its mostly in my rectum, and just aches so bad, I just dont know how to help in that area, its suc a gross area to deal with, and just is hurting so much i have to get up and talk around cos it hurts to be sitting, i just get up and rub my lower back and butt, but its not helping at all.
        I will keep in mind ot just use ice for short time. I didnt think for that to use ice or heat. My doctor didnt give me any information on this at all. she just said to go to physical thatrapy, which i cant, so now what,lol its all crazy.
        So thanks for all and any helpful hints.
        thanks again
        stacy


        Current Conditions:
        Endometriosis,1995
        IC,Feb 06
        IBS-C

        Prenecious Anemia
        Stomach Ulcers
        Duodenitis
        Acid Reflux
        Low Blood Sugar
        Hypothyroid
        Migrains

        Surgeries
        Laporoscopy-1995
        Gaul Bladder-1996
        Laporoscopy-2005
        colonoscopy2005
        cysto/hydro-2006
        cysto/hydro-2007

        endoscope-2007

        Meds:
        Elmiron,100mg 2am 2pm
        Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
        Elavil, 150 1pm
        Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
        Prilosec,20mg 1am 1pm
        Zoloft,100mg 1 pm
        Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
        Reglan, 10mg, 1 3xday with meals-for duonditis
        Ultram 50mg 1 every 4hrs as needed for pain
        Pyridim,100mg as needed
        Vicodin 5/500 as needed for pain
        Heating pad
        Ice Pack
        Arthritis Pain Equate brand 650mg usualy 2 at a time
        Stool softeners w/stimuli, 2am 2pm[/COLOR]

        Hopefuly no more gets added to the list!!!

        I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
        Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
        My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
        When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
        Dont forget to take care of you!
        Take care

        Comment


        • #5
          Hi! Sorry to hear you are in so much pain. I have PFD and have been to a PT. The baths and heat and ice sound like good ideas. My pt gave me some stretches to do--bring your knees up to your chest and hold them with your arms locked around them when you are lying down. Also, while laying down with knees bent, pull one knee over to the other side (keep buttocks on the floor). You might also ask your doctor for lidoderm patches. Mine help a lot with the pain. I hope some of this helps.

          Janice

          Comment


          • #6
            It could be nerve pain. I get alot of pain also. I also get that ache in the anal area too somtimes. Sometimes it feels like a charlie horse in my butt literally. It is painful. It could be a spasm in the anal area as well. I know it sucks, and I hope you get some help soon.
            Jen

            Comment


            • #7
              I was just diagnosed with PFD and started seeing a pt. she also said heat and ice helps although i have not tried that. stretching was the best thing for me..like someone else suggested lay on your back and pull your knees into your chest. the other stretches you can do are yoga stretches that stretch your butt and hip sockets. lay on your back with your leg straight up in air not bent and pull back with a belt then move your leg to the side still pulling with the belt. then cross your leg diagonal in the air so you feel the stretching down the outer part of your leg. mae sure you keep both hips on the floor. the other good stretch is to get on all fours and lay down on your knees folding at the hips stretching your arms out straight in front of you. the most important thing to do is to relax into the pain. im a dancer and over the years this has helped me tremendously. she also has me stretch on the inside but thats complicated. the stretching has worked for me tremendously. if anythign try stretching for a bit and see if that helps. this has worked for me but it could be the complete wrong thing for you. these are just my suggestions. hope this helps

              Comment


              • #8
                Pfd

                Apart from the suggestions you already have, Valium 2 mg tid is often given for PFD. Check out Dr Moldwin's interview on this IC site regarding PFD. Bring a copy to your Dr if you have to.

                Good luck

                Kathy

                Comment


                • #9
                  Re: Pelvic Floor Dysfunction? Need any Help I Can get.

                  Did pt help u guys w pain

                  Comment

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