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  • hi:(


    Hi Everyone;
    I am so angery with my doctors and medical insurance I just dont know what to do any more. The insurance i have makes me be so poor that i cant even pay my bills, yet, when i need something very important they will not cover it!
    Being told now i have this PFD, which Yeah i deffianly think its this, my ass is killing me, For over 2 weeks, acculy since when i had my cyst/hydro, its been hurting so bad. I had noticed it before but nothing like it is now.
    I called my Ob/Gyn, and i cant get in to see them till May 9th. I cant belive it. I try to get the nurse to talk to her which is what she told me to have done. The nuse was so snotty, she is saying to me well she wond do anything for you with out seeing you. I really wanted to smack her. I said tell her cos thats what she said to do. So i will be calling monday to make sure she gave her the message.
    I try my uro also and they are closed on fridays. My family doc is also closed on fridays, Its like ok does anyone work here. She just said call your family doctor then. Like my family doctor is going to do anything.She just say go to this or that doctor,which is what i am trying to do.
    But this new pain that is in my rectum is killing me, hurts to sit, I am leaning to one side, but its not helping me much. I have been sitting on ice pack a few times, but to have ur butt go numb is a strang feeling,lol helps while on it but once off it , it just hurts.
    I have been taking motrin, and flexeril, and even ultram, but they dont help just make me sleep. I just dont know what to do!!!!!
    Plus i still do not have a job. The job i thought was a sure thing, well i would have gotten it, but the previous nanny called the night before and aasked to have her job back. Thios really is showing how good my luck is lattly, cos i dont know what to even do any more.
    Next tue i go for the psychological test for ssi. I sure hope something happends with this. I cant barrow more money, i dont know what to do any more. Its one bad thing after another,I am so stressed out. I need help but nobody ehre to help me with anything. I am always put in a loose loose situation. this insurance thing though is the worst, If i cant go to physical tharapy, I dont know how things with the PFD will be able to imrove much.
    Thank for letting me rant here, I am so very stressed out. Home issues are not so good either. so that isnt a big help either.
    Once again if anyone knows anything please let me know,thanks so much
    stacy


    Current Conditions:
    Endometriosis,1995
    IC,Feb 06
    IBS-C

    Prenecious Anemia
    Stomach Ulcers
    Duodenitis
    Acid Reflux
    Low Blood Sugar
    Hypothyroid
    Migrains

    Surgeries
    Laporoscopy-1995
    Gaul Bladder-1996
    Laporoscopy-2005
    colonoscopy2005
    cysto/hydro-2006
    cysto/hydro-2007

    endoscope-2007

    Meds:
    Elmiron,100mg 2am 2pm
    Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
    Elavil, 150 1pm
    Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
    Prilosec,20mg 1am 1pm
    Zoloft,100mg 1 pm
    Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
    Reglan, 10mg, 1 3xday with meals-for duonditis
    Ultram 50mg 1 every 4hrs as needed for pain
    Pyridim,100mg as needed
    Vicodin 5/500 as needed for pain
    Heating pad
    Ice Pack
    Arthritis Pain Equate brand 650mg usualy 2 at a time
    Stool softeners w/stimuli, 2am 2pm[/COLOR]

    Hopefuly no more gets added to the list!!!

    I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
    Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
    My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
    When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
    Dont forget to take care of you!
    Take care

  • #2
    I'm so sorry you have to go through all this, Stacy, and I wish I had any way to help you. I can only tell you people do care about you, and your luck is bound to turn around soon. I wish I had anything better to offer; all I can say is I'm holding you in my thoughts. Let us know what happens with the SS. Be strong, Stacy, things will get better.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

    Comment


    • #3
      If your rectal pain is new, you need to see a doctor very soon.

      You might want to try stopping the motrin to see if that's a problem for you. Many ICers flare with any of the ibuprofen medications. I know I can't take them.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Have you tried als medicade to see if they can help you? If you have not money coming in they will pay all your bill back 6 months and I know that would help you alot. I know about money problems and with Doctors. I have spinal stenosis and I can't get my sugery on my back until next year because of how I screwed up everything. I won't get into that. So If my IC flair's up so soes my back and vise versa. Trying to get in to a doctor anymore is even harder. I would call again on monday and give it another shot to get you in, in the meantime go to ER if it gets so bad you can't do anything, this is serious enough to go there for a treatment. Don't worry so much about your bills right now, take care of yourself that is what is importmant. God will help you with the rest. Reach out to him he will help you guide your way. He speaks to us all differently. God bless you and I will be keeping you in my prayers. Please keep in touch so we know how you are.

        Lori

        Comment


        • #5
          Hi everyone;
          Well Ive noticed if i am laying down the pain is better. I got up this morning feeling ok, took shower got dressed, Sit down and now feel the pressure and the pain starting once again.
          Last night i sat 2-3 times on the ice pack, and then tried the heat also when i went to bed. I think just hte pressure of sitting is making it worse.
          I didnt have any problems before with mortrin, I will no use it for a few days see what happends. But if i gets to bad again I will go into the ER maybe. The walk in place is filled with idiots. If they dont know it they send me to the ER anyways.
          If you ant take Motrin what do you take? Late in the afternoon, I did do some exercising, and it seemed to help, but once again i was on the floor laying dowm. I dont want to be in bed the whole time. Standing seems to ease it up a little bit also.
          Thanks for the advice. I'll let you know if anything happends for the better i hope. take care everyone.
          stacy


          Current Conditions:
          Endometriosis,1995
          IC,Feb 06
          IBS-C

          Prenecious Anemia
          Stomach Ulcers
          Duodenitis
          Acid Reflux
          Low Blood Sugar
          Hypothyroid
          Migrains

          Surgeries
          Laporoscopy-1995
          Gaul Bladder-1996
          Laporoscopy-2005
          colonoscopy2005
          cysto/hydro-2006
          cysto/hydro-2007

          endoscope-2007

          Meds:
          Elmiron,100mg 2am 2pm
          Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
          Elavil, 150 1pm
          Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
          Prilosec,20mg 1am 1pm
          Zoloft,100mg 1 pm
          Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
          Reglan, 10mg, 1 3xday with meals-for duonditis
          Ultram 50mg 1 every 4hrs as needed for pain
          Pyridim,100mg as needed
          Vicodin 5/500 as needed for pain
          Heating pad
          Ice Pack
          Arthritis Pain Equate brand 650mg usualy 2 at a time
          Stool softeners w/stimuli, 2am 2pm[/COLOR]

          Hopefuly no more gets added to the list!!!

          I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
          Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
          My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
          When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
          Dont forget to take care of you!
          Take care

          Comment

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