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  • #1

    Have you all seen or heard of this?

    A friend of mine sent this website to me in an emai this morning. I know she meant well but wondered if you all had seen it? I'm not going to spend 30.00 on something that is just hyped up junk but thought I'd post to see if you all were familiar with the add?


    Well nuts, it wont let me post the website..just a string of ********'s. Is there a block on here that won't let you post it?



    **Normal is just a cycle on the washing machine**


    Wife and Sweetheart to Brent, Mom to Emily 30, and Destiny 29, and MOMMY to Jackson age 10. Granny to baby Cate, age 2 and the Queen to 3 dogs and 4 cats. Daughter to the King of Kings.
    Graphic Designer.

    Babyz Breath


    Instills- Once a week, Elmiron, Kenalog, Lidocaine, Sodium Bicarb.
    Daily Meds:

    Trileptal 600 mg for Bi Polar
    Lexapro
    Respiradal Mood stabalizer
    Baclofen
    Vicoden, 5.5 as needed for pain/stopped
    Bentyl for bladder spasms
    Urelle for burning
    Prevacid for Acid Reflux
    Lorazapem for Anxiety attacks as needed
    Ultram for pain
    Fentanyl Patch 75 mcg for pain/stopped due to skin rash
    Vitorin
    Tags: None
  • #2
    That means the site has been looked over by the administrators of the ICN and found to be a scam. Therefore, posting of the site is not allowed here.
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment

    • #3
      Ah...ok, well I thought maybe that was it but wanted to make sure.

      Thanks!!!



      **Normal is just a cycle on the washing machine**


      Wife and Sweetheart to Brent, Mom to Emily 30, and Destiny 29, and MOMMY to Jackson age 10. Granny to baby Cate, age 2 and the Queen to 3 dogs and 4 cats. Daughter to the King of Kings.
      Graphic Designer.

      Babyz Breath


      Instills- Once a week, Elmiron, Kenalog, Lidocaine, Sodium Bicarb.
      Daily Meds:

      Trileptal 600 mg for Bi Polar
      Lexapro
      Respiradal Mood stabalizer
      Baclofen
      Vicoden, 5.5 as needed for pain/stopped
      Bentyl for bladder spasms
      Urelle for burning
      Prevacid for Acid Reflux
      Lorazapem for Anxiety attacks as needed
      Ultram for pain
      Fentanyl Patch 75 mcg for pain/stopped due to skin rash
      Vitorin

      Comment

      • #4
        Jen is right. If the site is blocked, it's for a very good reason.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          unfortunately there will be more scams like this one, but it never hurts to ask others about it.
          'The will of God will never take you where the Grace of God will not protect you.'

          Comment

          • #6
            Is it the site claiming the IC is caused by some undetected bacteria and they claim to have the cure for it?
            I ask because I was sent a PM, a year or so ago, by someone from that site so I'm curious if they're doing it to others as well
            IC Live Journal

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