hi

[stacyY]

Hi everyone;
Well i wanted to thank the one who had give me the name of the type of doctor for PFD the Urognecologist. I contacted my family doctor the next day, and she had found one. Of course its in the univeristy of Michigan Hospital. Which i was to go a few months back, but i cancled it because i lost my job, and cant aford to drive back and forth(4hr drive there and back).
But I had gone into my family doc yesterday because i have been haveing swelling and really bad cramps for like 2 weeks now. I had not been able to get into my ob/gyn, which on monday the nurnse was so rude to me, i am not in a rush to go there as it is.
So yesterday at the family doc, she did a pelvic exam, ohhh my god i am still in pain from it. she was pressing on my stomach to see where it hurt, then she didnt find it so she said show me where it hurts then, so i did. Dumb idea in a way. She press so hard on it, and i jumped litterly off the table. Then she did it again. I cant belive 2 times. like one was not enough. i yelled it hurt so bad. She asked if i had any cysts. Well i do but its on the left side. And the pain is on my right side. SHe said well you just cant have a simple diagnosis can you. Nope never have never will i supose.
But ohh my god my side is hurting so bad, can hardly walk around the pain is like now wraped around my hip, and leg, where she pressed was like upper pelvic. I have had this pain in this one spot for 10 years now. No doctor ever tell me why. It is always there and if pressed on, its 10 times worse.
I had gone to see her for the swelling i been feeling in the vaginal area, but she said she didnt really notice it. Which i dont know how she cant. Maybe its so subtle that i can just feel it i dont know. I still feel it.
I feel my whole body is just falling apart its unreal how everything is like this. I just want to be fixed and thats it. there seems to never be an answer, and a cure for it or way to fix things for good. For being 33, i am so runned down, no energy, im lucky to be able to walk in a store without haveing to stop cos the pain starts up.
I am courious too, have anyone with IC and Endo, Had a hysterectomy, and felt better with both the Endo and IC. I am to a point to where i just cant stand it. I am not even married, and no kids. So knowing my luck, about the time i do a hysterectomy, then iw ill meet a guy who wants kids and then i say i cant then he will leave. thats how my luck always goes. SO its why i have been holding off saying just do a hysterectomy.
thanks for letting me vent. This last 2 weeks, i have had so much stress and worry, i just do not know what to thinka ny more about anything.
take care everyone.
stacy

[jen74]

Hi stacy.
I am sorry your doctor visit caused you so much pain. My gyne says she is sure I have endometriosis. I am not jumping to have no laproscopy though as I am not going to make myself any worse, and any type of abdominal surgery is always a risk.
Have you ever tried birth control pills. I know that my sister-in-law uses them to keep cysts away and my gyne said they sometimes will actully shrink the cysts. It is just an idea.
I am also 32 years old and I feel like you do, like my whole body is just breaking down. My dad who is in his 60s is in better health than I am. That is pretty sad. And NO, I would not rush into a hysterectomy. Did you know that 5 out of 10 hysterectomies performed are not even nessasary? I would leave that as a very last resort. It can makes things even worse from what I have read as far as IC is concerned. Try other routes first.
I hope you feel better soon. Big hugs.
Jen

[leelee88]

Hi Stacey,
I have heard that having a Hysto can make things worse with your IC..I agree with Jen about the birthcontrol, that is what has helped my Endo..
I am sorry you are having to go through this, but with the right meds it will get better...((((((((((((hugs)))))))))))

[ponytail]

I know what you mean about feeling like you have a swelling. I used to tell doctors I looked red and sore and they would examine me and say nothing is wrong. And I would feel like saying but can't you see what I see? In the end for that type of pain I think, it was a combination of doing the diet, cutting out smoking and drinking, acupuncture and doing things like practically boiling underwear when washing, using very eco friendly washing liquid, leaving my business and after 10 years and now at 40, having slightly less hormones - I am feeling much better with that. Having said that a ct scan has just shown up something pressing on my uretha and I will find out tomorrow but think its a cyst or ulcer. Don't rush into hysterectomy. Also I tried reducing painkillers to reduce chemicals in body and I find mega doses of disprin/asprin helps the type of pain without me sufferiing afterwards and seems to inhibit the ulcer/cyst slightly. Cannot explain why.

[stacyY]

Hi everyone;
I have acculy been on birthcontrol pills since i was 22 or so, To help with cysts. Since i was about 28, I had been placed on continuious BCpills, which it helps so much to control the pains. I still have a cyst in the same spot, which has never went away.
I swear my body never responds to regular treatment to anything. Is always have to be drastic treatment. Like I keep getting bladder infections, ever month, or eery 2 months. the antibiotics would help for the one, but hten i keep getting them. So now i am on 6 months of antibiotics. Then when i saw a kiddney specialist, because there is a scar on my kiddney the CT scan showed that, he recommended maybe even going a year on an antibiotic. Just so that it keeps them a away for a long time.
I try not to ever use the pain pills, i wait till its really bad before i will use them. Then tend to use only 1-2 days max and then just stick to motrin or so.
The last time i had seen my real Ob/gyn, she has acculy mentioned a hysterectomy. She told me cos she did a laporoscopy in 2005, and at that time, she just said" i have an angery uterius" it was red and inflamed, and u can litterly see the blood vesels poped out on it. But she then said to me no endo. Then nov of 2006, she said she thinks i do have Endo and she missed it during surgery. in nov. I was haveing a lot of spotting, and constant cramping like i am now haveing so much cramping. So then i was back in Jan, cos still haveing the cramps, so she said ok now we are looking at a hysterectomy.
So i am so confused. I dont want to end up making my IC worse. I cant stand the pains now.
Thanks so much for your advice. I really need it. I am so confused right now with everything. And to many doctors, and no common treatment.
thanks again
stacy

[jen74]

Hi Stacy.
I am not sure I agree with the kidney doctor who told you to stay on antibiotics for a year. Unless he is meaning the low dose macrodantin or something which is like a prevenative more so than taking a regular strength antibiotic.
Being on regular strength antibiotics for a long period can cause alot of damage to the digestive tract. I would tread carefully there. I know first hand what they can do. I had to take two rounds of antibiotics a few years back for a severe throat infection that would not go away. Well, they messed my stomach up but good. I actually believe that alot of my tummy issues are the result of taking antibiotics.
I wish I had some better answers for you. Maybe someone else will chime in. I hope you feel better soon Stacy.
Jen

[mlch]

stacy some doctors just don't get, do they? Why would they push on a sport so hard when are already telling them it hurts there. That uro I saw last month did the same thing to me. OUCH to say the least. I am so sorry it happened to you too. I hope you can find some help and relief soon.