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I'm so shocked I didn't even read the article yet, but there is an article on IC in my May 28, 2007 issue of First magazine. Okay, I just read the whole article now! It is very good. It says the official count of IC patients is now up to 2 million, but it is believed to be at about 10 million! I'm so glad! Wow, and they even put our website in for more information! You have got to read this one! Thank you.
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woohooooo.. thanks for sharing thisHugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I had read that too some place, just not sure where.. lol probably at the uro's'The will of God will never take you where the Grace of God will not protect you.'
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Awesome!!!! Can't wait to check it out tomorrow!!!!Comment
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Fantastic news!:woohoo: I will have to go out and buy one!Meds I take:
Elmiron, Elavil, Vagifem- for IC
Albuterol, Flovent, Atrovent- for Asthma and lung problems
Paxil, Clonazepam- for depression and Anxiety
Atenolol- for rapid heart rate
Nexium- for Gerd
Levothyroxin- for Hypothyroidism
Lasix, Pottasium- for edema
Lipitor- for High Cholesterol
I coated aspirin
02 at bedtimeComment
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:woohoo: Me too!"Never Give Up."
To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/
My Photobucket Link:
http://s237.photobucket.com/albums/f...ramack_photos/Comment
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I actually saw an "information" commercial on tv the other day and it was explaining the symptoms of IC and that the average amount of doctors that a patient sees before being properly diagnosed was 5 to 6. I meant to Tivo it so I could show my hubby, plus see if there was any other information about it, but in my enthusiasm, I accidentally changed the channel. It wasn't "an informercial". I didn't mean to make it sound like that, it was just one of those very rare facts to know type commercial. Has anyone else seen that commercial?
T83Comment
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That is great that word is finally spreading about IC! I am so glad that this was in another well known magazine. I cant wait to get my copy!
Thanks for letting us know!
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I'm so excited that the word is getting out! Of course, all these articles make it sound like you just take a pill or do a therapy and you are fine (some of us, the traditional therapies don't work for, and I wish magazines would mention those of us who need pain management) but I'm still overjoyed that the word is getting out and people are starting to understand this is not a terribly rare disease after all.
Woo hoo!
Blessings,
LoriComment
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good for more articles on ic
I now have a huge stack of articles on IC compared to the few I had upon getting diagnosed in 1993. My friends are very helpful; they call me and tell me "you know that thing you have with your bladder, well its in the issue of so and so" Bringing more attention to our disease is what we want.:woohoo:Comment
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I think this is great news..I just got done reading the article and it was very good.. But I wish it had gone into more detail about the pain.. The lady that said she has it .. She said doctor helped her learn to control her symtoms, well I would like to know who her doctor is..lol but I am so glad the word is getting out.. So many of us go years with the symptoms but with no answers.. It looks the the word about IC just might be catching peoples attention, now
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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How exciting!
Is there a way to view this article online?Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.Comment
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Kara,
I checked out the home site for the magazine but it only had a place where you could order it..Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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This is wonderful news. I love to hear about this happening. I hope to hear it more and more. I can't wait for the day when this is all over the magazines and news shows, and this sounds horrible but I can't wait for when it's the "hot" new disease that every news placeand talk show picks up the story.
We all need to do our part too, anything you can do, if it is donate a few dollars to ICN to help promote IC issues, or to write your magazines, or favorite program, like Oprah, Today Show etc. a letter and ask them to do a story on it and link them to this site, for research. Many places have an online place to send story suggestions. I know I've tried it a few times. Or even write your local stations or newspapers.
I do think many peoples efforts are working, as already more and more doctors seem to aware of IC, compared to stories of IC people going to the doctors years ago.Diagnosed with IC in 9/2005,
Currently doing good, taking breaks from Elmiron, reduced amount.Comment
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I read the article a few days ago. It was really good. I too thought that it was odd how she recovered found something that worked so quickly-yeah, who is her dr! LOL I'm so glad to see it out though. Whenever I find one of those articles I show it to all my co-workers and say "see, I'm not crazy!"Comment
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