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I was on my way home from cleaning the church yesterday and I just started to laugh out loud. My grandma was riding home with me and my son...I know that was random just wanted you to see the whole picture,lol....anyway I had been thinking about how I had just been diagnosed a week and 2 days ago, and then I thought of all the abbreviations. Then I started to laugh, and my grandma asked what was so funny, my reply was, "This is messed up, I now have IC/PBS and now I've got PMS too!" I had to find the humor in all these syndromes or I would go crazy. To make things even better my 2 year old was in the back seat screaming at the top of his lungs.... ic mommy pms... along with some other things I couldn't quite get. There is also one more thing to add... when I think PBS, usually Public Broadcasting Station pops into my head. Reason being is in New Orleans we had a channel called PBS. Just thought I'd share this with everyone. I tried to fix the last thread b/c I had a typo in the title so please, I'm not dumb, really I'm not.
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Last edited by nola_heart; 05-05-2007, 10:45 AM." Home is ultimately not about the place to live but about the people with whom you are most fully alive. Home is about love, relationship, community, and belonging, and we are all searching for home."
" Our ability to endure, to persevere, to overcome is fueled by this one seemingly innocuous ingredient called hope."
I'm reading this book by: Erwin Raphael McManus called Soul Cravings. I saw these passages and decided to share them with you.
http://i189.photobucket.com/albums/z...rom2007006.jpg
http://i189.photobucket.com/albums/z...art/new259.jpg
http://i189.photobucket.com/albums/z...t/100_0123.jpg -
HI! I had to laugh reading your post. I too have so many abbrevations IC, IBS, GERD, OA......it great crazy after a while! Hopefully during our lifetime Doctors will get our health issues figured out and we'll just have our names to remember...wouldn't that be nice??? Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo: -
It is funny. You get to the point where other people have no idea what you're talking about! Now, you need to add that it was so amusing you just had to post it here -- on the ICN.
ps -- I haven't been able to figure out how to make changes to a title either, and I am a computer scientist, LOL. If you figure it out, please let me know!Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Peace, Carolyn
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Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
On the Beach with IC Comment
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I was on my way home from cleaning the church yesterday and I just started to laugh out loud. My grandma was riding home with me and my son...I know that was random just wanted you to see the whole picture,lol....anyway I had been thinking about how I had just been diagnosed a week and 2 days ago, and then I thought of all the abbreviations. Then I started to laugh, and my grandma asked what was so funny, my reply was, "This is messed up, I now have IC/PBS and now I've got PMS too!" I had to find the humor in all these syndromes or I would go crazy. To make things even better my 2 year old was in the back seat screaming at the top of his lungs.... ic mommy pms... along with some other things I couldn't quite get. There is also one more thing to add... when I think PBS, usually Public Broadcasting Station pops into my head. Reason being is in New Orleans we had a channel called PBS. Just thought I'd share this with everyone. I tried to fix the last thread b/c I had a typo in the title so please, I'm not dumb, really I'm not.
In addition, a friend just made a good point which I decided to share " that this is so amusing I just had to share it here."" Home is ultimately not about the place to live but about the people with whom you are most fully alive. Home is about love, relationship, community, and belonging, and we are all searching for home."
" Our ability to endure, to persevere, to overcome is fueled by this one seemingly innocuous ingredient called hope."
I'm reading this book by: Erwin Raphael McManus called Soul Cravings. I saw these passages and decided to share them with you.
http://i189.photobucket.com/albums/z...rom2007006.jpg
http://i189.photobucket.com/albums/z...art/new259.jpg
http://i189.photobucket.com/albums/z...t/100_0123.jpgComment
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Its great you can laugh about things like this, it helps get you threw. You got a great positive attitude, even though we have crappy days and anything else which gets dropped in our laps.
We have the choice to sit and cry or laugh about life. IF we always are crying,lol we be crying daily. And boy wouldnt that be a pretty site,lol.. Keep up the postive attitude, and keep laughing...
Best wishes.
stacy
Current Conditions:
Endometriosis,1995
IC,Feb 06
IBS-C
Prenecious Anemia
Stomach Ulcers
Duodenitis
Acid Reflux
Low Blood Sugar
Hypothyroid
Migrains
Surgeries
Laporoscopy-1995
Gaul Bladder-1996
Laporoscopy-2005
colonoscopy2005
cysto/hydro-2006
cysto/hydro-2007
endoscope-2007
Meds:
Elmiron,100mg 2am 2pm
Seasonique,1 night(helps control pain for Endo)Provera, 10mg 1 night
Elavil, 150 1pm
Flexeril, 10mg 1 night(was to be 1 am also but makes me to sleepy)
Prilosec,20mg 1am 1pm
Zoloft,100mg 1 pm
Topamax 25mg 1am 2pmCyannobalamin(b12), 1 injection every 2 weeks
Reglan, 10mg, 1 3xday with meals-for duonditis
Ultram 50mg 1 every 4hrs as needed for pain
Pyridim,100mg as needed
Vicodin 5/500 as needed for pain
Heating pad
Ice Pack
Arthritis Pain Equate brand 650mg usualy 2 at a time
Stool softeners w/stimuli, 2am 2pm[/COLOR]
Hopefuly no more gets added to the list!!!
I wish the best for all of you and hope the days with pain are few. I wish you peace and calmness... for we all need it, with out it... the pain is worse.
Try to take the best care of you that you can. When you are not happy with the care you get dont hesitate to get the help you need. Sometimes a 2nd opinion can give the calm and peace which you are seeking.
My prays go to all of you. For I know there are many who are have many bad days and need a shoulder.. Always remember this site, for its made a huge differance to me and many people. Here you can find the the ear your looking for when you just need to vent.
When your not looking for Im so sorry and I have no idea what can help you. Here we understand the pains the suffereing and most of all the Constant frustration. For anyone who needs it.. I will do my best to be the ear who can listen and help how ever I can. All my best to all of you.
Dont forget to take care of you!
Take care
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