Hi I finally decided to join this forum. I was diagnosed with IC 10 years ago. But I had it for at least 4 years before that. I am a male(so many of the urologists never even thought that I could have IC). I had searing pain and I was freaking out. The first urologist said I had a blockage and that I needed to have a terp. Which is to cut away part of the prostate. This is for guys who have enlarged prostates. I was in so much pain I agreed. But I was barely 40 years old. My wife stopped me. Thank God. I was 1 day from having the operation. Thwas a close call. I went to several more urologists and they all said I had non-bacterial prostatitis. They even questioned that the pain was all in my head. I finally found a urologist who suspected IC. I had the procedure where they infalte your badder with water and then look inside with a scope to see what was happening. I was then diagnosed with IC.
I did the DMSO Cocktail bladder installations and was much better. But I became allergic to Heprin and thus could no longer do it.(that was a truely terrible experience) Life has been up and down since. I found alpha stim helped a bit with the pain. My acupuncturist helped to some degree. He also suggested taking Naticor and serralone enzymes on a empty stomach. This has helped over the last few years. It seems to reduce the inflammation. But I still get flare ups and I have had two major flare ups in the last 4 weeks. Which really concerns me. I was in so much discomfort I was beside myself. I am better today though it still is bothering me. I take 25mg of atrax twice a day. Also 5 mg of Hytrin before bed. Plus 6 caps of Bladder Q. And the Naticor and serralone 3 times a day.
It took me awhile to join this board. I figured few men would be on here.
My wife is very understanding. But still I needed to talk with someone else who has this problem. It can be tough to cope with. There are days I pray to just be normal. It's a bit better today but I don't feel totally comfortable.
I have increased my intake of the enzymes and also I take urised to numb some of the pain. Though I have side effects from this stuff and can only take it for about 4 days or so then i have to quit.
What do you fellow sufferers do when you have major flare ups? Any advice?
Any other men on here?
Thanks
Jrn
I did the DMSO Cocktail bladder installations and was much better. But I became allergic to Heprin and thus could no longer do it.(that was a truely terrible experience) Life has been up and down since. I found alpha stim helped a bit with the pain. My acupuncturist helped to some degree. He also suggested taking Naticor and serralone enzymes on a empty stomach. This has helped over the last few years. It seems to reduce the inflammation. But I still get flare ups and I have had two major flare ups in the last 4 weeks. Which really concerns me. I was in so much discomfort I was beside myself. I am better today though it still is bothering me. I take 25mg of atrax twice a day. Also 5 mg of Hytrin before bed. Plus 6 caps of Bladder Q. And the Naticor and serralone 3 times a day.
It took me awhile to join this board. I figured few men would be on here.
My wife is very understanding. But still I needed to talk with someone else who has this problem. It can be tough to cope with. There are days I pray to just be normal. It's a bit better today but I don't feel totally comfortable.
I have increased my intake of the enzymes and also I take urised to numb some of the pain. Though I have side effects from this stuff and can only take it for about 4 days or so then i have to quit.
What do you fellow sufferers do when you have major flare ups? Any advice?
Any other men on here?
Thanks
Jrn
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