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Hi all,
I have read some of the posts here and trying to get a feel for things. I've been having some health problems and I'm not sure what exactly is wrong with me... so I thought I'd ask a few questions and see if you guys could offer some guidance. Gonna be a long post... I apologize.
My mother has had extreme IC for close to 15-17 years. Nothing has ever seemed to help her condition. I grew up my whole life with her saying things like "you better hope you never get this!" Well, I'm starting to think maybe I have.
Ever since I became sexually active at 19 (I'm 29 now) I would get UTI's all the time. Don't think I ever got a kidney infection from them, but I was getting them maybe 6 times a year or so. For the last 4 years or so, I haven't really gotten any and I had been feeling ok. I may have had some issues but never really noticed them or just blew it off.
Well, at the beginning of April... I found two papercut/fissure sores on my labia (I had found one previously a few years before but thought nothing of it) following that, after sex, I immediately did not feel right at all. I thought I was getting a UTI. But it was different this time because it did not hurt to pee but I had to go constantly. I was having pain in my pelvic area and in my vagina... so, I went to the urgent care for a UTI. They found "trace" amounts in my urine and gave me 10 days of cipro. I started to feel a bit better but after 4 days it actually got a little worse. And its hard to describe how it felt but it was just wierd...it didn't feel like I had a UTI. A few days later, the urgent care called and said my lab results on my urine were normal. So, I went to my OB.
The OB said it looked like a yeast infection and gave me medicine for that and took a culture. They also took a urine sample...totally normal. So, I took the yeast stuff... did not help. I then got my period and the OB was telling me it was just cramps and stuff. So, I waited till my period was over... it seemed to get a bit better and I ignored it. The yeast culture was negative.
Then I had sex again and immediately after the pain and stuff started coming back... but the need to pee seemed to be gone. I went to the regular doctor and got blood work...another urine test...normal. Blood work was normal... doctor did mention IC as a possibility. The strange thing at the doctor's office was I had a 100 degree fever for no reason. I was also having some lower back pain and tingling in my vagina...
The next day I found another "paper cut" sore and immediately went back to the doctor because I thought I had herpes. All the symptoms seemed to be herpes symptoms and it seemed to make sense. They took a culture and blood test for it. She also put me on herpes medicine.
So... I thought that's what it was... got my blood work back yesterday and I'm very very negative (totally low end of the result scale) for both types of herpes. She also had tested me for yeast, bacteria ...etc...and everything was normal. My pap from the 4th of May was also normal.
So, I started thinking about IC... could it be hereditary? What exactly does "pain in your bladder" feel like? I seem to feel ok the past few days but I was feeling like my uterus was going to fall out...pressure on my vagina... the random pains...pain in my pelvic area and in my vagina... could this be IC? And do some people have it more mildly than others? I was reading some of your posts and it seems like the pain was cripiling ... this pain is fairly managable for me and seems to help if I take a couple motrin.
Any help is appreciated...the OB has thrown her hands up in the air at me saying that there is nothing wrong with me aside from having dry vagina which is probably causing the paper cut thingies.
Thanks!
I have read some of the posts here and trying to get a feel for things. I've been having some health problems and I'm not sure what exactly is wrong with me... so I thought I'd ask a few questions and see if you guys could offer some guidance. Gonna be a long post... I apologize.
My mother has had extreme IC for close to 15-17 years. Nothing has ever seemed to help her condition. I grew up my whole life with her saying things like "you better hope you never get this!" Well, I'm starting to think maybe I have.
Ever since I became sexually active at 19 (I'm 29 now) I would get UTI's all the time. Don't think I ever got a kidney infection from them, but I was getting them maybe 6 times a year or so. For the last 4 years or so, I haven't really gotten any and I had been feeling ok. I may have had some issues but never really noticed them or just blew it off.
Well, at the beginning of April... I found two papercut/fissure sores on my labia (I had found one previously a few years before but thought nothing of it) following that, after sex, I immediately did not feel right at all. I thought I was getting a UTI. But it was different this time because it did not hurt to pee but I had to go constantly. I was having pain in my pelvic area and in my vagina... so, I went to the urgent care for a UTI. They found "trace" amounts in my urine and gave me 10 days of cipro. I started to feel a bit better but after 4 days it actually got a little worse. And its hard to describe how it felt but it was just wierd...it didn't feel like I had a UTI. A few days later, the urgent care called and said my lab results on my urine were normal. So, I went to my OB.
The OB said it looked like a yeast infection and gave me medicine for that and took a culture. They also took a urine sample...totally normal. So, I took the yeast stuff... did not help. I then got my period and the OB was telling me it was just cramps and stuff. So, I waited till my period was over... it seemed to get a bit better and I ignored it. The yeast culture was negative.
Then I had sex again and immediately after the pain and stuff started coming back... but the need to pee seemed to be gone. I went to the regular doctor and got blood work...another urine test...normal. Blood work was normal... doctor did mention IC as a possibility. The strange thing at the doctor's office was I had a 100 degree fever for no reason. I was also having some lower back pain and tingling in my vagina...
The next day I found another "paper cut" sore and immediately went back to the doctor because I thought I had herpes. All the symptoms seemed to be herpes symptoms and it seemed to make sense. They took a culture and blood test for it. She also put me on herpes medicine.
So... I thought that's what it was... got my blood work back yesterday and I'm very very negative (totally low end of the result scale) for both types of herpes. She also had tested me for yeast, bacteria ...etc...and everything was normal. My pap from the 4th of May was also normal.
So, I started thinking about IC... could it be hereditary? What exactly does "pain in your bladder" feel like? I seem to feel ok the past few days but I was feeling like my uterus was going to fall out...pressure on my vagina... the random pains...pain in my pelvic area and in my vagina... could this be IC? And do some people have it more mildly than others? I was reading some of your posts and it seems like the pain was cripiling ... this pain is fairly managable for me and seems to help if I take a couple motrin.
Any help is appreciated...the OB has thrown her hands up in the air at me saying that there is nothing wrong with me aside from having dry vagina which is probably causing the paper cut thingies.
Thanks!
And I hope you get answers and relief soon... Good Luck!
)
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