Why is it that I have so much bladder pain- vaginal too?Why is it that I never feel like doctors really "get it"? Why is it that I suffer on a regular basis,left alone in my mind to figure it out.Why is it that there is always a shortage of compassion, that doctors dont know or care how painful this is for me? Why is it that I am made to feel like a "druggie" when I dont like the way pain pills make me feel..I just like to be out of pain?Why is it so hard for them to understand this? Why is it that when a uro examines me they see proof positive of my pain in tears, and yet they fail to really "see " that. Why is it not heard by doctors that I suffer after sex- am I supposed to not ever have any! And not complain to the doc about it?But apparently,I am using too much vicodin...60 in 2 mos. Why cant they see that I MUST have pain if I am taking them!Why dont they get it?For truths sake, I have never smoked, drank or done drugs in my lifeand yet I am made to feel guilty for taking pain pills that really just take the edge off anyway..whooppee....when they dont reside in my bladder and dont know what I live with.I can honestly say that if I had to live without treatment and understanding of my bladder pain, and pain relief I would really not want to live .No, I am not saying I am or would ever go there ....what I am saying is there is a desperation to be heard and helped that runs deep in me because I have not had the best care with male uros..patting me on the hand with 1 eyebrow raised at the same time leaves me deflated to try another.We treat outr own animals with more care than some uros.I certainly didnt ask for this bladder pain,or want it,so why is it that I always have to PROVEthat I have i.c.then they"down play it by saying ...."well we really dont know what ic is! Well heck if they really "dont know"how I suffer with it!?..So today I guess I just feel hopeless and misunderstood...like the scenario of me on bended knee to the Dr begging for them just to help me help myself get better.Some quality of life huh..grin and bear it till its ok to have my pain pills refilled in 2 weeks.Why cant I find 1 uro that can really see the life of an icer and say "Ok lets try this;! Or something in that direction. My poor husband has paid the price of my pain and knows that it is not a fair disease...but always has an uplift for me.He knows what I go thruans I to tell him really how bad it hurts, because he loves me so much it pains him to see me like that. I guess I am just tired of this disease cycle...Ill get over it . Ok my pity part is over.. I got it off my chest. Thankies for listening.
Guess What!!!!!!!! I wrote this 2 days ago(above) and just today found the most compassionate female uro, here in Newport Beach, Ca. She gave me estrogen vaginally, an instil which I normally scream...but didnt cuz she used a 8 french and numbed me good..used solumedrol(never had before) and heparin,took my hubby with me as backup..so glad I did she checked my pfmuscles, no uro ever had and made a plan to get me better.
I ask so little...really we all do...with this disease just some hope and understanding and a plan of action and the world is whole lot brighter isnt it!
I am sorry to have gone on so long. Its nice to see you all here again...I havent been on in awhile ...moved to Ca. and my daughter has my puter lol!
Thankie, thankie and more thankies my ic friends
Guess What!!!!!!!! I wrote this 2 days ago(above) and just today found the most compassionate female uro, here in Newport Beach, Ca. She gave me estrogen vaginally, an instil which I normally scream...but didnt cuz she used a 8 french and numbed me good..used solumedrol(never had before) and heparin,took my hubby with me as backup..so glad I did she checked my pfmuscles, no uro ever had and made a plan to get me better.
I ask so little...really we all do...with this disease just some hope and understanding and a plan of action and the world is whole lot brighter isnt it!
I am sorry to have gone on so long. Its nice to see you all here again...I havent been on in awhile ...moved to Ca. and my daughter has my puter lol!
Thankie, thankie and more thankies my ic friends
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