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Thanks for all the great advice

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  • Thanks for all the great advice

    Hey, I just want to thank all of you out there for your helpful information and suggestions. This is my first post, but I’ve been lurking since last August, when I did a search of my symptoms and was directed to this site. I can’t tell you how reassuring it has been to hear that other people have gone through the same things and have lived to tell about it. You have given me hope that things will get better. And you know what, they have!

    Following the IC diet is the best thing I’ve done. Whoever put together that list deserves a medal! At first I thought it would be impossible, because pretty much all the foods I ate—onions, tomatoes, citrus, bananas, soy, coffee, chocolate—were off-limits. But I’ve managed to stick to it pretty well and now I feel like a completely different person. I go for days with no pain whatsoever! Besides the diet, the best advice I’ve gotten from all of you is to take Prelief before meals and to rinse with a water bottle after urinating. Mostly, it’s helped just to know that I wasn’t crazy and that other people have the same problem. So thank you, thank you!

  • #2
    Hey! Glad you came out of lurking and posted.

    The ICN is pretty amazing, isn't it? It's helped me in so many ways over the years. Don't know what I would have done without it. I have gotten more information about IC and its treatment HERE than I ever have from my uro - and he's a really good doctor!

    That's awesome that the diet is helping you so much. It can make such a big difference.

    Keep posting, OK?

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


    • #3
      Glad you came out of the shadows and started posting. I'm so glad things have improved for you. This board has been awesome for me too. It is a great place.

      (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

      [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
      :angel: IC Angel Volunteer Coordinator :angel:
      :) Contact me via PM or e-mail if you would like to help
      I have learned all about life in 3 words: It goes on! :D--Robert Frost
      PCOS 7/85
      RSD 7/94 :headbang:
      Endometriosis 9/98 :toilet:
      Antiphospholipid antibody syndrome 9/99
      Kidney stones--too many to count
      Factor V Leiden mutation 10/02
      IC 6/03 :evilsmile
      Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
      "Spirit is an invisible force made visible in all of life"--Maya Angelou
      "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]


      • #4
        to the Land of the Posters. Happy that you took the dive. Even happier that you have found help and are feeling better. :woohoo:

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.

        Link to the ICN Patient Handbook:

        Link to the IC Diet:

        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.