I still have difficults with my IC

[Flávia]

Hi
I was diagnosed with IC 4 months ago, but it is still very difficult for me to life with this disease, my symptoms decresead a lot with the treatment, but I still don't feel completely save to do everything that I used to do.
I wanna know how was for you and the relation with family and friends.

Thanks

[Linda May]

Ic

I was diagnosed with ic in april 2010, I had a UTI and IC. I had a cystoscope done is how they found the desease. At one time I had ic,uti,and a yeast infection at the same time. I went through escruitiating pain for three months, my first urologist was uncaring and did not seem to be compassionate about my pain. The last time I visited his office he said I did not have a UTI that it was the ic only. Well that same day i went to another urologist out of my area and he said i had a horrible Uti. He put me on antibotics and a week later started me on Dmso treatments it took six treatments for pain relief. I had complete relief for one month i did something stupid and drank 2 cups of coffee went into a mild flare now i am back on dmso. I have three more to go and i pray i dont have another flare for a long time. So as you can see I am rather new to this horrible desease to, i have tried to find out as much as i can about it. this forum is great because their are alot of ladys that have had this desease for years and they have alot of info. I too want to get completely well to where i feel like doing my normal routines but i have got to wait and see how things turn out. this is a awful thing to have and i am praying that they will find a cure or magic pill that prevents any of these symtoms from occuring. Keep in touch and let me know how things are going for you.

[Linda May]

Ic

Oh as far as the relationship with family and friends they try to understand but, no one really knows how bad this desease is unless they have it. I never even heard of it until i was diagnosed. I know there are many desease that i still have not heard about. But one thing about this desease is when it is at its very worst, burning, frequencing, shooting pains, backache, uti, yeast infections ect. You cant get hardly any sleep or be able to eat and get so weak because it drains the life right out of you, then this desease is compared to cancer pain. You would think that the doctors would put you on strong pain meds during that time, but for some reason most doctors will not do that. they gave me elmiron and tramadol which did nothing to ease the pain. I pray i never get that bad again, every icer is different what works for you might not work for me. Try to keep faith and get as much info from the net and your urologist. best of luck to you.

[ICNDonna]

to the IC Network.

It can take several months to find treatments that will work. Are you on the IC diet? If not, I suggest you start today. You'll find the link to the food list in my signature below.

Sending healing thoughts,
Donna

[Flávia]

to the IC Network.

It can take several months to find treatments that will work. Are you on the IC diet? If not, I suggest you start today. You'll find the link to the food list in my signature below.

Sending healing thoughts,
Donna

I will start the diet.
Thanks for the advice.

Flávia

[bob04951]

As Donna says, try the diet. Eliminate all the no-no foods and add things back in very gradually. You will quickly see what the triggers are. Good luck to you.

[VickiB]

I'm glad your symptoms have decreased with treatment, though sorry to hear it's still difficult for you. Relationships with family and friends can be a bit rocky when one has IC. I think a big part of the problem is that we 'look' fine on the outside with no obvious reason of why we should be in pain. Not everyone is good at believing that which cannot be seen. And even then, not everyone is good with empathy. I think it's one of those cases where you find out who your real friends are.

Vicki