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Hi everyone,
I just read a post I wrote 2 years ago and remember how much pain I was in when I was pregnant with my second child.
Here's my story in a nutshell:
I'm 31, mother of 2 (4 yrs and 2 yrs). I was diagnosed with IC in 2005 via the potassium test and I was also a few weeks pregnant with my first child, unbeknownst to me. I was put on Elmiron orally then stopped taking it in my third trimester and got it injected into my bladder. Throughout my pregnancy I had some urethral burning but the bladder pain seemed to stay away.
Fast forward to 2008. Severe, debilitating pain when pregnant with my second child. I suspected that I did not have IC but something else because the Elmiron did nothing.
Now, it is December 2010. I had a cystoscopy and laparoscopy at the end of October because I had to go to the ER in August for SEVERE pelvic pain. They did a pelvic exam but the doctor told me I had to have to have surgery to find out the cause of the pain. Endometriosis was suspected.
I had my surgery and my bladder was cracked and read and horribly in pain. So I have IC.
My reason for doubting IC is that I do NOT have frequency OR urgency! I only have pelvic pain and vulvar pain. I am hoping to find someone who has these symptoms as well...I have literally NO urgency or frequency unless I drink a lot of water!
I started the Elmiron at the end of November and my urogynecologist told me it takes 6 months to fully kick in. I also take Acidophilus, Amitryptiline and Zoloft for anxiety/depression. I'm on birth control as well.
I'm in day 3 of a major flare and it's only getting worse. I never did the IC diet before but my doctor said that even if I don't FEEL a flare, acidic foods can still damage my bladder.
I am unable to exercise at all, even going for a walk can bite me in the butt later on. I love to run and work out but I get terrible pain.
Right now I'm in the worst pain I've had in months! My vaginal area is on fire, my bladder is on fire and I have no clue what to do. The only thing I can think of is sexual activity last week and a ton of chocolate over Christmas weekend. It's really disheartening.
I have accepted my diagnosis (grudgingly) and am trying to figure out how I can just be normal. I wait tables and have been unable to work as much as I'd like or need because of the pain.
Thoughts? Advice? I'd love to e-mail with anyone who can offer some hope, some solution. I just ordered Cystoprotek and Prelief and am going to order some supplements on Evenbetternow.com.
I am just seeking support. Please, anyone. I feel helpless.
Thx,
Becky
31 years old, mother of 2
Diagnosed November 30, 2010
Elmiron 400mg a day (taken at night all at once)
Amitriptyline 30mg a day (taken at night all at once)
starting Cystoprotek this week
I just read a post I wrote 2 years ago and remember how much pain I was in when I was pregnant with my second child.
Here's my story in a nutshell:
I'm 31, mother of 2 (4 yrs and 2 yrs). I was diagnosed with IC in 2005 via the potassium test and I was also a few weeks pregnant with my first child, unbeknownst to me. I was put on Elmiron orally then stopped taking it in my third trimester and got it injected into my bladder. Throughout my pregnancy I had some urethral burning but the bladder pain seemed to stay away.
Fast forward to 2008. Severe, debilitating pain when pregnant with my second child. I suspected that I did not have IC but something else because the Elmiron did nothing.
Now, it is December 2010. I had a cystoscopy and laparoscopy at the end of October because I had to go to the ER in August for SEVERE pelvic pain. They did a pelvic exam but the doctor told me I had to have to have surgery to find out the cause of the pain. Endometriosis was suspected.
I had my surgery and my bladder was cracked and read and horribly in pain. So I have IC.
My reason for doubting IC is that I do NOT have frequency OR urgency! I only have pelvic pain and vulvar pain. I am hoping to find someone who has these symptoms as well...I have literally NO urgency or frequency unless I drink a lot of water!
I started the Elmiron at the end of November and my urogynecologist told me it takes 6 months to fully kick in. I also take Acidophilus, Amitryptiline and Zoloft for anxiety/depression. I'm on birth control as well.
I'm in day 3 of a major flare and it's only getting worse. I never did the IC diet before but my doctor said that even if I don't FEEL a flare, acidic foods can still damage my bladder.
I am unable to exercise at all, even going for a walk can bite me in the butt later on. I love to run and work out but I get terrible pain.
Right now I'm in the worst pain I've had in months! My vaginal area is on fire, my bladder is on fire and I have no clue what to do. The only thing I can think of is sexual activity last week and a ton of chocolate over Christmas weekend. It's really disheartening.
I have accepted my diagnosis (grudgingly) and am trying to figure out how I can just be normal. I wait tables and have been unable to work as much as I'd like or need because of the pain.
Thoughts? Advice? I'd love to e-mail with anyone who can offer some hope, some solution. I just ordered Cystoprotek and Prelief and am going to order some supplements on Evenbetternow.com.
I am just seeking support. Please, anyone. I feel helpless.
Thx,
Becky
31 years old, mother of 2
Diagnosed November 30, 2010
Elmiron 400mg a day (taken at night all at once)
Amitriptyline 30mg a day (taken at night all at once)
starting Cystoprotek this week
Thing is, Elmiron doesn't work for everyone and even for those who do find improvement it seems common that if they stop they go right back to square one. 
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