Hi everyone,
I just read a post I wrote 2 years ago and remember how much pain I was in when I was pregnant with my second child.
Here's my story in a nutshell:
I'm 31, mother of 2 (4 yrs and 2 yrs). I was diagnosed with IC in 2005 via the potassium test and I was also a few weeks pregnant with my first child, unbeknownst to me. I was put on Elmiron orally then stopped taking it in my third trimester and got it injected into my bladder. Throughout my pregnancy I had some urethral burning but the bladder pain seemed to stay away.
Fast forward to 2008. Severe, debilitating pain when pregnant with my second child. I suspected that I did not have IC but something else because the Elmiron did nothing.
Now, it is December 2010. I had a cystoscopy and laparoscopy at the end of October because I had to go to the ER in August for SEVERE pelvic pain. They did a pelvic exam but the doctor told me I had to have to have surgery to find out the cause of the pain. Endometriosis was suspected.
I had my surgery and my bladder was cracked and read and horribly in pain. So I have IC.
My reason for doubting IC is that I do NOT have frequency OR urgency! I only have pelvic pain and vulvar pain. I am hoping to find someone who has these symptoms as well...I have literally NO urgency or frequency unless I drink a lot of water!
I started the Elmiron at the end of November and my urogynecologist told me it takes 6 months to fully kick in. I also take Acidophilus, Amitryptiline and Zoloft for anxiety/depression. I'm on birth control as well.
I'm in day 3 of a major flare and it's only getting worse. I never did the IC diet before but my doctor said that even if I don't FEEL a flare, acidic foods can still damage my bladder.
I am unable to exercise at all, even going for a walk can bite me in the butt later on. I love to run and work out but I get terrible pain.
Right now I'm in the worst pain I've had in months! My vaginal area is on fire, my bladder is on fire and I have no clue what to do. The only thing I can think of is sexual activity last week and a ton of chocolate over Christmas weekend. It's really disheartening.
I have accepted my diagnosis (grudgingly) and am trying to figure out how I can just be normal. I wait tables and have been unable to work as much as I'd like or need because of the pain.
Thoughts? Advice? I'd love to e-mail with anyone who can offer some hope, some solution. I just ordered Cystoprotek and Prelief and am going to order some supplements on Evenbetternow.com.
I am just seeking support. Please, anyone. I feel helpless.
Thx,
Becky
31 years old, mother of 2
Diagnosed November 30, 2010
Elmiron 400mg a day (taken at night all at once)
Amitriptyline 30mg a day (taken at night all at once)
starting Cystoprotek this week
I just read a post I wrote 2 years ago and remember how much pain I was in when I was pregnant with my second child.
Here's my story in a nutshell:
I'm 31, mother of 2 (4 yrs and 2 yrs). I was diagnosed with IC in 2005 via the potassium test and I was also a few weeks pregnant with my first child, unbeknownst to me. I was put on Elmiron orally then stopped taking it in my third trimester and got it injected into my bladder. Throughout my pregnancy I had some urethral burning but the bladder pain seemed to stay away.
Fast forward to 2008. Severe, debilitating pain when pregnant with my second child. I suspected that I did not have IC but something else because the Elmiron did nothing.
Now, it is December 2010. I had a cystoscopy and laparoscopy at the end of October because I had to go to the ER in August for SEVERE pelvic pain. They did a pelvic exam but the doctor told me I had to have to have surgery to find out the cause of the pain. Endometriosis was suspected.
I had my surgery and my bladder was cracked and read and horribly in pain. So I have IC.
My reason for doubting IC is that I do NOT have frequency OR urgency! I only have pelvic pain and vulvar pain. I am hoping to find someone who has these symptoms as well...I have literally NO urgency or frequency unless I drink a lot of water!
I started the Elmiron at the end of November and my urogynecologist told me it takes 6 months to fully kick in. I also take Acidophilus, Amitryptiline and Zoloft for anxiety/depression. I'm on birth control as well.
I'm in day 3 of a major flare and it's only getting worse. I never did the IC diet before but my doctor said that even if I don't FEEL a flare, acidic foods can still damage my bladder.
I am unable to exercise at all, even going for a walk can bite me in the butt later on. I love to run and work out but I get terrible pain.
Right now I'm in the worst pain I've had in months! My vaginal area is on fire, my bladder is on fire and I have no clue what to do. The only thing I can think of is sexual activity last week and a ton of chocolate over Christmas weekend. It's really disheartening.
I have accepted my diagnosis (grudgingly) and am trying to figure out how I can just be normal. I wait tables and have been unable to work as much as I'd like or need because of the pain.
Thoughts? Advice? I'd love to e-mail with anyone who can offer some hope, some solution. I just ordered Cystoprotek and Prelief and am going to order some supplements on Evenbetternow.com.
I am just seeking support. Please, anyone. I feel helpless.
Thx,
Becky
31 years old, mother of 2
Diagnosed November 30, 2010
Elmiron 400mg a day (taken at night all at once)
Amitriptyline 30mg a day (taken at night all at once)
starting Cystoprotek this week
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