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How Living with IC makes me miserable at times

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  • How Living with IC makes me miserable at times

    I was diagnosed with IC 3 years ago. And it was a relief that there was a name for it or that it had been studied before. I kept getting treated for bladder infections over and over again. I thought i was losing my mind. I began feeling depressed and anxious about the pain. I was worried about my job, it was hard getting up in the morning after suffering from bladder pain and having to go to the bathroom about ten times during the night. After many visits to the urologist he confirmed that i had IC and had to have the horrible instilations (DMSO)
    done once a week for six weeks. The pain did ease up a bit, and i was crying less often, so i was grateful for that. I was put on Elmiron, and imipramine and was feeling better in about 3 weeks. I have to avoid alcohol and spicy foods which is no fun beacuse i feel a cant enjoy a glass of wine with my fiance. I will soon be getting married but i am concerned i want to have children but how will my IC
    affect me during pregnancy? im terrified thinking about the pain i will possibly go through

  • #2
    Yeah, it's a little depressing in what we often have to trade to avoid pain. For what it's worth, I think that gets easier in time.

    From what I've read here, people have varying experiences with IC & pregnancy. Every time I was pregnant my symptoms went away and didn't return until my baby was close to weaning. Plenty of other people have mentioned it was that way for them as well. Hopefully when the time comes this will be your story too!

    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."


    • #3
      Welcome to the boards. There is a forum on here about pregnancy and IC. You might want to check it out. Luckily, I had my children before I was diagnosed with IC. I know I read a post by someone on here that was pregnant and had to go off her meds during it. But I have also read that some have had remissions during their pregnancy. Hopefully, that will be the case for you. But idk much about IC and pregnancy. I would check into reading the forum about it and see what those who are going thru it have to say.