and I've been recently diagnosed with both IC, severe bladder prolapse and Fibromyalgia.
My symptoms began over 20 years ago. Initially, doctors thought it was "frequent, recurrent UTI's" and treated me with antibiotics. When that failed, I was sent to a urologist who did a cystocopy in his office and told me I simply had a narrow urethra, and that having urethral dialation done periodically would "cure" my symptoms. It did'nt. So I went to another Uro who did'nt even examine me and just threw blood pressure pills at me cause it cured the symptoms in men, so he thought, "what the heck let's try it". Did'nt work. Ater throwing a major fit to the director of the uro department at Kaiser, I found a wonderful urogynecologist, who ran the whole gamut of testing on me (urodynamics, distension, cystoscopy, biopsy) and then due to having to relocate, Kaiser dropped me! So once I had my new insurance I went to my PCP and she was able to help me get my records from Kaiser, eventhough Kaiser took MONTHS to respond. Once we finally got my records my PCP automatically referred me over to my current Uro. My current Uro has me on 4 meds (elmiron, hyomax, cimetidine and atarax) right now to get my flares stablilized because I need to have surgery to repair my bladder prolapse. He as well as my rheumatologist, agreed that Fibro and IC are two of those things that go hand in hand...and they will be working together to help me feel better.
My uro also gave me a dietary guide for IC. I feel very discouraged about that the most. For 30 years I've always looked forward to my morning cup of Joe and I also enjoy a diet coke in the afternoon, as well as an occasional glass of wine or cocktail with dinner. Giving up things like chocolate and onions as well as mexican and thai cuisine makes me sad
But overall, I am satisfied with my current Uro, other than a quick pelvic exam he saw no reason to put me through any more BARBARIC testing/procedures and I like that. I am hoping too, that once my bladder is repaired that maybe I won't be as susceptable to flare ups. Is there anyone else here that has had a bladder prolapse repaired who could share some experience/knowledge with me? I'd really appreciate it. Now just taking things one day at a time.
My symptoms began over 20 years ago. Initially, doctors thought it was "frequent, recurrent UTI's" and treated me with antibiotics. When that failed, I was sent to a urologist who did a cystocopy in his office and told me I simply had a narrow urethra, and that having urethral dialation done periodically would "cure" my symptoms. It did'nt. So I went to another Uro who did'nt even examine me and just threw blood pressure pills at me cause it cured the symptoms in men, so he thought, "what the heck let's try it". Did'nt work. Ater throwing a major fit to the director of the uro department at Kaiser, I found a wonderful urogynecologist, who ran the whole gamut of testing on me (urodynamics, distension, cystoscopy, biopsy) and then due to having to relocate, Kaiser dropped me! So once I had my new insurance I went to my PCP and she was able to help me get my records from Kaiser, eventhough Kaiser took MONTHS to respond. Once we finally got my records my PCP automatically referred me over to my current Uro. My current Uro has me on 4 meds (elmiron, hyomax, cimetidine and atarax) right now to get my flares stablilized because I need to have surgery to repair my bladder prolapse. He as well as my rheumatologist, agreed that Fibro and IC are two of those things that go hand in hand...and they will be working together to help me feel better.
My uro also gave me a dietary guide for IC. I feel very discouraged about that the most. For 30 years I've always looked forward to my morning cup of Joe and I also enjoy a diet coke in the afternoon, as well as an occasional glass of wine or cocktail with dinner. Giving up things like chocolate and onions as well as mexican and thai cuisine makes me sad

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