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  • Bad flare up

    I'm having a bad flare & it's been a year since I've been in this much pain. I feel like such a burden & I'm so irritable to my husband & kids because the pain is so bad. I'm really tempted to have my bladder removed. I haven't had sex in over a year & don't think I'll ever again have any kind of sex life with my husband. I just want the pain to go away, I've had IC for 20 years. I think it's time for me to have my bladder removed.

  • #2
    Are you on any treatments? Following an IC diet? While I agree that bladder removal is sometimes the only alternative, it should really be the last resort.

    I hope you feel better soon.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I'm sorry that your in so much pain
      I hope by now your feeling better
      20 Years?
      How have you managed it this long?
      I'm 21 and was diagnosed last year after my first pregnancy. I'm constantly in pain. It's unbearable most days I can't get off of the couch!!!
      Have you ever had a piece of your bladder removed???
      Or anything like that?

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