No announcement yet.

Newbie to Posting: ? about nerve blocks/severe pain

  • Filter
  • Time
  • Show
Clear All
new posts

  • Newbie to Posting: ? about nerve blocks/severe pain

    I am an IC sufferer with the past 3 years I have been in a constant flare, with unrelenting, severe pain 24/7. I am on permenant disability because of all the narcotics I take and that I can't sit for long periods of time or it causes my pain to escalate. These last 3 months have been the most challenging days of my life. I've lost hope as nothing seems to work and I'm developing tolerance to the narcotics. The fear that the is going to come when nothing will work to help my pain and it scares me to death. I do follow the diet quite closely, never drink, haven't had sex in three years and have been unable to do even the simplest of activities as I end up in so much more pain. My husband is a Godsend, the most wonderful and empathetic man on earth. He always hugs me and says "We are in this together and we will get through it". What an angel, I adore him for his loyalty and compassion.
    I recently switched urologists and my new MD has some great alternative ideas. I am now seeing a pain management group, for the first time just before the holidays while I was hospitalized for bladder irrigation. The doctor performed a caudal nerve block. He told me it could take as many as 4 or more blocks to begin to feel reduction in my pain. IC related neuropathy is now called "Complex Regional Pain Syndrome" since the nervous system is so hyper excited causing the sympathetic nervous system to rage in high alert, thereby exacerbating the pain. I've hit the wall and have been in a very dark place. I do see a psychiatrist as well.
    Does anyone have any experience with these nerve blocks, which ones work better than others? I have heard of the pudendal block, the hypo gastric nerve plexus block, the caudal block at S-3 of the spinal cord. I take 100mg of Oxycontin three times a day and I am never completely free of pain. Lately since I just had a cyto with hydrodistention, I am waking up at night quite frequently in pain. The pain wakes me up it's so sever.
    Alright, I've bored you to tears now. Any advice is welcome, I have had IC for 15 years now. I want 2011 to be a healing year for me. Thanks so much for listening/reading my miserable life.