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Thousands of cases in a city of 100 000 people...

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  • Thousands of cases in a city of 100 000 people...

    I talked to the nurse at the urologist's office today. I still don't have an appointment, she said the waiting list is shocking - every urologist in the city has a waiting list several hundred people long.

    She said there are "thousands of cases of Interstitial Cystitis here."

    Thousands, in a city about about 100 000? And she said all those cases are from here, not from any other areas.

    Is that normal?

  • #2

    I never even heard of IC until I was diagnosed 6 months ago. That number of IC patients seem awfully high. If this disease progresses that much in every State and Country maybe the government will give more money for research. The public needs to be aware of this depilating disease. We need a cure for this yesterday.
    <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


    • #3
      That is quite shocking! Does she have any explanation? Are people coming there from outlying areas? Where are you in Canada?
      Julie Beyer, MA, RDN
      IC Dietitian, Patient Advocate, Speaker, & Author

      Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

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      • #4
        It is indeed shocking! I sincerely doubt the numbers she is stating. Is there a different doctor you can see?

        Stay safe

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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          Wow Cap. Maybe it's something in the water!

          Maybe people are just getting educated and realizing what may be really wrong with them.

          Please, please keep us informed. Everyone would be interested to know what the doc's theory is on this. Could be a very important clue.

          Take care, Jill, wife of Bob


          • #6
            I too am in Canada and this sounds familiar.

            In a city of 75,000 people - the head nurse of the urology clinic told me she has over 1,500 patients on Rimso ... that doesn't include the ones that are not on that treatment.

            Hmmm ... makes ya wonder